Akron Children’s Eating Disorder Program is located in Ohio. It offers outpatient eating disorder treatment and inpatient hospital stabilization for children and adolescents of all genders.
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Dates: 2020 – 2025 (Age 15–20)
LOC: Inpatient & Outpatient
The Inpatient Protocol:
The “doorway” eating protocol is strictly enforced: 30 minutes for meals, 30 for supplements, or you get an NG tube. They perform orthostatics twice a day. While you fill out a menu, they often disregard your choices. During one of my stays, I was kept for two months instead of being sent to a specialized residential facility because they thought I would not go. During this time, I was on a “normal” meal plan of massive proportions (e.g., 4 uncrustables, sun chips, 3 orders of broccoli cheese, 2 chocolate milks). My body was constantly sick from the sheer volume. They had never done a long stay for someone like that so I was basically there test trial and when it came to me leaving they realized and told that it was a bad idea and they would never try it again with anyone else. Most of my stay before this were like 2 weeks at the most to just stabilize me and send me home. The most recent stay they didn’t let me eat for almost 2 weeks and just gave me constant tube feeds at a very high volume and then started to add food and expected me to eat all normal meal plan with the same amount of volume of the tube feed + the overnight feed they added!
Staff & Environment:
• Medical over Therapy: There is almost zero therapeutic support. There was only one psychologist for the unit. Most of the “treatment” is just forced weight gain.
• Nursing Culture: I overheard nurses talking about patients’ bodies—comparing who was the “smallest” and labeling me a “frequent flyer.” I also had two nurses go through my phone without permission because I left it open when they took it to be locked up.
• Lack of Privacy/Safety: I had a sitter 24/7, was not allowed to leave my room, and was forced to shower with the door open.
[*TW: restraints*]
Coercion & Restraints:
The doctor’s default was “restrain her if she refuses.” I was threatened with physical restraints for refusing to change clothes or for feed refusals. I was forced to take medication that I was uncomfortable with, which eventually put me into a manic state. At one point, they even sent me home with a tube still in, expecting my parents to manage the entire medical process themselves.
[*END TW*]
Outpatient & Advocacy:
The outpatient team (Dr. S****/L**** B****) can be sweet when you are “doing well,” but if you struggle, the tone shifts to being dismissive. They threatened to stop seeing me if I didn’t “progress,” which is a terrifying thing to tell someone with a restrictive ED. My parents had to threaten to sue the hospital to keep me when I was unstable, and when I had relapsed and gotten very sick but the hospital initially refused to take me back.
Summary:
This program focuses on the scale, not the person. They use high-pressure tactics and lack the psychiatric resources to actually help with the mental side of the illness. I left more traumatized than I arrived. Over the past 5 years I can say there have been some good things that have happened through the program but overall I’ve only declined and been left worse mentally than when I started seeing them!
This is so accurate, and it’s so sad to see the overarching themes across departments. I wasn’t ever inpatient at ACH for ED stuff, but I was up on 8100 (the psych unit) 3 times in a 3 month period back in 2022. *TW: restraints* They had a room with a bed for 4-point restraints. *end TW*
The doctors were pretty meh, and I was put on ED protocols for the last couple of days during my 3rd stay, which just meant that they didn’t give you anything in labels and probably watched you a little closer.
They gave so many people one-to-ones, and you could be on “one-to-one, no groups,” which meant you were just in your room with your one-to-one in the doorway the entire day with no other contact. When I was getting discharged the second time, I was told that if I came back, I’d be on one-to-one, no groups, “as a punishment for not using my coping skills”, which was what happened. Even when you could be with the group, talking was rarely allowed to minimize the chance of contacts being shared, or whatever their justification for non-evidence-based care was. Additionally, if you were on a one-to-one, you would have to be watched in the shower by one staff member with another staff in the room, not watching, but just as another body. I totally understand this policy, but as someone with a trauma history, it made my showers very…quick.
It was definitely better than the standalone psych hospitals, but it was unhelpful at best.