This is a temporary sub-page of the Client General Forum. It has the Client General Forum posts that mention the things most likely to be triggering to people – hopefully this will make this General Forum easier to navigate as a whole! There is NO difference between how a post looks here versus there. Posts seeking advice are simply moved here if they mention *TW*low bmi*END TW* and/or *TW*tubes of any kind*END TW*. All posts still meet site guidelines and are recovery-positive (including harm reduction-positive).
Any post that goes up here still has the individualized trigger warnings as it would there. POSTS ARE MOVED HERE BY ADMIN. You can still scan through, can still pick and choose which posts to read based on the trigger warnings, and in posts that only briefly mention the triggering thing can still see which part you might want to either brace yourself for or skip over .
I’m looking for suggestions for adult ed res/ip programs anywhere in the US that are willing to make accomodations for chronic illnesses that are unrelated to my anorexia. Examples of possible accommodations include being able to miss groups as needed, needing a single room/not having a roommate, and being able to use supplements to help complete meals without being punished or penalized. I am midly UW but medically stable so medical stabilization programs are not an option. Might be a positive if the res/ip potentially uses *TW* ng tubes *end TW* to help with refeeding as my GI system likes to episodically not cooperate. I’m also autistic so neurodivergent friendly/informed is a massive plus. I’m very open to suggestions for treatment programs anywhere in the US but I do have my eye on potentially ERC Bellevue, Laureate, and Rogers. Would also welcome replies on places to be avoiding given the above factors.
you might try ERC. They have some private rooms, accommodate supplements, and groups aren’t mandatory. they can tube you if you need it and do night or continuous feeds. good luck!!
I would HIGHLY recommend Laureate! I have seen them make a lot of accommodations based on the patients needs. On LIBR there are no roommates and there are single rooms at Canyon. Missing groups to rest is totally normal and the doctor can write an order for that. They do use feeding tubes when necessary and they are neurodivergent friendly! I had a great experience there and it would be my top choice!
I’m reaching out hoping someone could offer insight that might help my friend who is looking to return to treatment. She’s had great luck at CFC but they aren’t currently able to accommodate her needs. She’s contacted Laureate but they have a long waitlist and haven’t confirmed if they’ll even take her.
Friend has been in and out of treatment a few times. She is over 30, will likely need NG tube support, and an inpatient level of care.
Based on reviews on this site, my thoughts were Rogers, Princeton, TEP (Veritas) or Walden. She likes the idea of Monte Nido Houston but isn’t medically stable and may not qualify for residential. I’m hesitant to recommend Walden or TEP to her because recent pinned reviews haven’t been great, but they both offer tubes and don’t have an age cap. If anyone has more recent information on how these programs are currently, that would be much appreciated.
Of the programs above, would anyone recommend one over another? Or are there other programs that might be a better fit?
Princeton sounds like a good fit based off the brief description you gave of her situation. I had a very recent positive experience. The current milieu is majority 30+. What I don’t know about is the waitlist. I don’t know anything about the other programs that isn’t on their review pages. Sanford could also be worth looking into, although I know they also tend to have a long waitlist.
Of those centers, I’d be least likely to recommend Walden for inpatient. Sounds like if her insurance covers Princeton and Rogers, that she should do an intake with both and see what the waiting lists are like while finding out more about the programs themselves.
Maybe there is a community member who has experience with more than one of these programs that could offer a comparison?
Sometimes laureate will bump people up if there is a last minute opening. I would continue to stay in contact with them. I had a similar situation and laureate was life saving for me. I have seen them accommodate very acute levels of care.
Is it even possible to find a local hospital that would help with refeeding for a week or so? This would be an adult with basically no treatment options between insurance, bills , can’t travel far and location. Has anyone asked or worked with a local hospital? Very voluntary although I do have medical problems and GI issues although probably nothing critical until I start the process.
I know this is vague on purpose though. Not feeling great, not sure what I can saw without anTW. malnourished and too low of weight for most programs in network, which actually I don’t think I have anything.
my primary doctor isn’t an ed doctor. Does anyone have experience or suggestions?
Hi there – I am an adult *TW: tubes* who was getting an NJ tube placed after a prolonged period of minimal nutrition. My OP team was concerned about stability and wanted me to do a short inpatient ED treatment stint to stabilize with the tube under supervision but they also know my thoughts on IP ED treatment. We made a compromise of sorts that I would begin the refeeding process under medical supervision in a general medicine unit at my local hospital. I was adamant on it being solely medical and nothing therapeutic (ie. threatened that if a social worker even came in to my room to “chat” I would refuse the service). My dietitian and GI provider coordinated the admission and the hospital basically just monitored and coordinated the initial increase in both oral nutrition and what I was getting through the tube and made sure I was stable enough to continue increasing/feeding upon discharge. *END TW* Throughout the time, I couldn’t see my dietitian (bc of insurance billing while admitted inpatient) but did telehealth with my therapist as normal. My GI provider was instrumental in making it happen. She does not specialize in ED’s but does have a decent understanding. The critical part was that she was very open and understanding so by having the conversations with me and my dietitian she understood the situation and was able to relay it in a way to the hospital that allowed for an admission. Not sure if this is feasible for you or what you are looking for, but I’m happy to provide more details if it’s something you would want to pursue with your own team/treatment.
*TW*
Thank you so much for your post AC, this is super helpful for someone like me (older adult, 43F with very low BMI) looking for medical stabilization and help with the refeeding process without *** being in an ed-treatment center. *** I just [want] to be monitored so that medically I can safely gain weight while I refeed. I wonder if this is something I can inquire about at my local hospital. How would you recommend one go about finding out if this could be an option at my hospital? I assume all hospitals are ABLE to keep you medically stable while you refeed, the question is are they WILLING to do so, right?
*admin note: some words have been rephrased and judgmental anti-treatment phrases redacted per the purpose of the site, and to avoid triggering others
Hi Vanessa – I just posted a lengthy detailed reply to ‘adulting’ so once it’s approved it should likely answer your questions, but if not, or you have more, just let me know!
Hi
thank you so much for sharing! Yes this is almost exactly what I was needing. Except I don’t really have too much of a team. I do have a GI doctor who understands one can have an ed and physical issues.
maybe I’m missing this, but I wouldn’t even know how to start this. Or know how to explain. Ed treatment isn’t available to me and I’m more on palliative care , pain management.
I’ve been thinking about this but haven’t been able to bring my questions together. I don’t have a dietitian.
i think this sounds like it worked really well for you and they met you where you are. This is what care should be.
i would like more details, or where you started. I’m just not confident that the hospitals near me would agree unless I was critical.
TW ahead: discussion of diagnoses (specific), weight loss (in general terms), tubes
Rachel – I hope this post isn’t “too much” or detailed for this forum. I’m not sure where the community stands with offering private email exchanges so don’t want to offer that if it’s frowned up. If it isn’t and/or it would be appropriate for ‘adulting’ and I to connect that way, please let me know!
‘Adulting’: I think the fact that you have a GI provider who even remotely understands ED’s is the most important part. The other crucial element is all about diagnosis – and I don’t necessarily mean the ED. My admission was all arranged through GI. My GI provider called over to our local hospital and spoke with the “admitter” (a physician role that all hospitals have on staff that essentially triage cases for inpatient admissions) and explained my situation. The diagnosis that justified the admission was one of malnutrition. My dietitian explained to me that any of the E42 – E46 listed below are generally enough reason for inpatient admission as they put one at risk for refeeding syndrome. Any other physical health issues/comorbidities that one has or has a history of (cardiac or pulmonary issues, especially) just further support the need for monitoring.
Common ICD-10-CM Malnutrition Codes (E40-E46)
Clinical Indicators for Coding
I think because I was so adamant that this was treated solely as a medical issue (ie. for the malnutrition) vs. eating disorder related, the hospital was much more willing to work with my admission as I wasn’t asking/requiring any specialized ED services that they may not have been able to provide if I needed them. Also, I was by no means “critical”: my labs even at the time of admission were completely stable/”normal” and my weight/BMI was slightly underweight numerically but nowhere near. The admission was really based purely on the malnutrition diagnosis and risk of refeeding syndrome, given the above. I want to be clear that everything was purely medical, and there was minimal discussion/talk of anything ED related with me personally while I was there. Obviously it came up, especially when discussing things with the inpatient dietitian, but there was no support or even really when it came to completion of oral intake. It was really me doing the oral intake on my own (with them monitoring that) and then them administering and monitoring tube feeds (amount and feed rate) all the while monitoring closing for refeeding syndrome.
I think a first step would be to talk to your GI provider and get them on board with what you are looking for so you can craft a plan together. If there is a clear plan w/ expectations, the hospital is going to be much more willing to admit. Then it would be on the GI provider to begin the process and essentially present/advocate your case.
Happy to answer any questions, offer suggestions, share more, etc. at any point in time!
Wow thank you so much! This is extremely helpful. I do have a few questions but don’t know if they are able to be said?
I was going to do this last year but the hospital would only do feeds. Is that the only way insurance can pay? I’d rather eat as much as tolerated with GI issues.
ii don’t want to say the wrong thing here. I do really appreciate your help.
im sure something would qualify me but it not really done in my area.
what can I ask about tube, vs food on this forum?
thank you just wanted to say how much I appreciate your openness
Adulting – I moved this thread to the trigger warning subforum of the General Forum, so feel free to ask questions related to tubes and your other questions, etc.
<3 Rachel
Hi do you think a hospital would re feed with only food not tube if able?
my GI doctor is months out on appointments anyway, I feel just exhausted and that’s not really an er issue. Sorry I don’t know how I want to phrase my questions.
Yes, you can state that desire. The hospital can help with re-introducing foods into your oral intake while offering liquid supplements to make sure you get enough nutrition as you work towards your goals. I did not use a feeding tube during my med-surg stay in the Boston area.
They worked with me to go from NPO on an IV to clear liquids to full liquids then added soft solids and bland solids, then added meal components of my choice. I was given liquid supplements to replacement what I wasn’t able to finish. That hospital had me on Glucerna due to SMAS and SIBO.
When I was transferred to the psychiatric unit in Cambridge, they continue Glucerna and weren’t as strict with meal completion, though the nurses would want me to have ginger ale or juice if my vitals were not what they wanted. I did not have to specify food dislikes and was never forced to eat anything I did not like.
Especially while on the med-surg unit, they want increased oral intake and wanted me to pick flavors, options that I was willing to try. If something came on my tray and I didn’t like it or it got cold, I was allowed to choose something else. They worked very hard to make it not seem punitive and allow me choice. I did not have choice in what my meal plan level was, or if I was having supplement or not, nor was I informed about their goals for my nutrition status or weight restoration. It was treated as very much a medical illness requiring medical oversight for re-feeding risk and GI care while in the hospital.
If you are located in New England or Northern New England, and would like to know anything more specific, please e-mail Rachel and ask her to share my e-mail address with you. I am happy to discuss further, but want to be mindful about not doxxing my self.
I think so! When I was admitted and met with the dietitian my first day, she asked me what my goals for the stay were and how they could help meet them. This would be a place where you could state your desire to refeed as much as possible orally and limit any need for a tube as much as possible. I think this is pretty standard process for dietitians in a general medical setting and even if it is isn’t, if you can advocate that clearly for yourself, they would be willing to work with you. Honestly, it’s not much difference for them in how the refeeding process happens ie. if it’s done orally or enterally (depending on your physical state, of course); it’s more about the monitoring for potential refeeding syndrome symptoms. Keep the questions coming if you have them — happy to help!
Agree with all of this. I was hospitalized on a med-surg floor in the Boston area with the E43 diagnosis in 2023 for a week after 2 days in the ICU. They had a CNA 1 to 1 in my room at all times. MDs, GI, psychiatrist, and social worker were sent to my room. I was not allowed out of bed, eventually able to use a walker or wheelchair to the bathroom. One of the CNAs played cards with me and washed my hair since I wasn’t able to shower. The only negative part was that I was involuntarily transferred to an inpatient psychiatric unit in Cambridge for 6 days due to my other psychiatric issues.
Which region of the country are you located in?
I am in northern New England, but this was not at a major hospital in Boston.
I acquired a PCP that had admitting privileges to the local hospital and we do this sort of arrangement to stabilize without an ED / patch admission. I presented the MD the NICE guidelines and they managed to make it work. There were a few times I had rounds w/ other hospitalists, but they rarely made any changes. I think I just had to be seen daily, so weekends, a general hospitalist completed the rounds to dot the i’s and cross the t’s. These were the most helpful and peaceful higher level of care experiences. It could be challenging to piece together with urgency, but I had learned enough the hard way that I set this up almost like an advanced directive. Best wishes.
How did you find a dr with admitting privileges ive not been able to since 2013 or so?
Hi there! Unfortunately, I don’t really have any advice as it sounds like you are familiar with the concept. I actually no longer stay abreast with ED treatment culture and industry practices, aside from this website.
Around when the time you last were able to access a PCP w/ admitting privileges, I was only just learning how to utilize them to bypass the conventional system! I wish I had realized it as an option much sooner though, as it literally became my lifeline.
My PCP just retired in December 2025, but he maintained his hospital privileges quite recently. I first acquired his services in 2021. At that point, our local providers still listed hospital affiliations on their bios, along w/ credentialing information.
I haven’t faced trying to find a new provider as I continue to have healthcare PTSD, but my 3-month prescriptions put a time stamp on the need to face this again. On the bright side, I no longer require outside help for my ED specifically!
Everyone has different needs and medical admits for renourishment allowed me to break my revolving door “treatment system” pattern! I hope you find freedom in a safe, tolerable form!
*TW: tube (GJ)*
Wondering if I can get some opinions. I have been told by my treatment team that I will not be able to continue with them if I don’t return to inpatient for stabilization. I absolutely do not want a long stay (I am 55 and have been in and out of facilities since 18 and need to get back to work rather quickly). I planned to go back to Princeton as it is rather local to me and I have had decent experiences there but there is a waitlist. Princeton recommended to look in to the following in case they can’t get me in: Acute (been there 3 times, my concern is the step down they would require….don’t want to step down to another facility, just my outpatient team and I don’t want to be cert’d), Robert Wood Johnson in northern NJ, Johns Hopkins, or Sheppard Pratt. I have a GJ tube so I need a place that will accept me with that. I called Sanford today but I know they tend to have a wait list. Does anyone have experience with these places and which would you recommend? Thanks for any help!
Sheppard Pratt does not accept patients with tubes at all. I think John Hopkins and RWJ would be better with medical complications. I’ve never been to John Hopkins, but I have been to RWJ and can answer any questions you have about them! Based on my experience there, I think RWJ is pretty good with most medical complications of ED’s
I am wondering if anyone can help me. My team has told me if I don’t go inpatient they will no longer see me. I would be ok with that (although sad to lose them) however due to medical complications I have a GJ tube and my RD is the one who does the recommendations to my GI doctor who then submits to the supply company, so without her I have no access to supplies. I called Princeton today and they have closed their waitlist and that is the only place I would consider going as they would allow me to come for just a brief stay. Has anyone been able to admit to a hospital for malnutrition and avoid inpatient altogether? If so, how were you able to do it? Thanks for any help.
Hey Anon! I’ve heard of one person who was able to go to ACUTE for a few weeks of medical stabilization and then go home to their treatment team. I imagine in order to do this, you have to be very motivated to recover, comply when you’re in the hospital and have your team communicate to hospital staff they they think you would be okay being released to their care. Also know that
Sanford in North Dakota has an ED program that takes very ill patients and they have a SEED program that is about 2-3 weeks long. Even if you are not considered SEED, I would look into them.
Good luck!
I’ve seen the term SEED on here several times, would you be willing to explain what that actually means? I feel like I know most of the acronyms except that one lol
It means severe and enduring eating disorders. There are a lot of definitions of it, but they usually include a certain number of years with an ED, often a certain minimum age, and sometimes also having been to treatment and relapsed after
That means Severe and Enduring Eating Disorder. I prefer the term longstanding eating disorder but SEED is what you tend to see in literature.
Thank you for your response. I will give Sanford a call. I have been to Acute a few times and my concern would be the step down they would require for me to be able to leave (they have really helped me in the past but I wouldn’t want to risk being put on a hold as that did happen to me once there).
How is the SEED treatment different than “regular” treatment THANKS!
Hi, I’m really struggling finding a place that will support extremely low BMI along with medical issues that require monitoring. I’ve been rejected from ERC Denver and they told me to go to Denver ACUTE which I can’t because I have Medicare as a secondary insurance. Any help would be appreciated!
I suggest you check out Princeton and Sanford!
Princeton doesn’t take primary medical cases. they would make you do a medical floor first then transfer to them
I would check out Laureate! You may have to spend some time at St. Francis main, but they are able to care for high levels of acuity. I speak from my own experience and others in the milieu I was in.
any recommendations for medical stabilization programs/hospitals for a 23 yo with a GJ tube?
TW: low BMI
I’m seeking out treatment for anorexia and I know I will be recommended to an inpatient level of care. I have been to ACUTE before and I’m looking at avoiding going there again as I’d like to take a harm reduction approach and historically they are not welcoming of that. Unfortunately for me, my BMI is at or below the cut off for some facilities. I am currently looking into Center for Change and The Emily Program. Has anyone been there recently that could share their experience. Or if there is another place you’d recommend I am open to that too
So I’m in same situation and Im in the process of getting admitted to Alsana will say super lenient facility honestly if your not in the best head space it will be might be very hard to recover since don’t really have any consequences to acting on behavior but once again everyone reacts differently so maybe it works for some one as much as doesn’t for some one else really depends but they do go out a lot and get fresh air and really cater to your needs
**TW** I just got rejected from alsana for bmi being too low
I have been to both-they are very different programs and take different approaches. Have you looked at ERC? Princeton?
Could you tell me more about the different approaches?
Have you tried Walden?
I think Sanford is really the only program that is known for doing a harm reduction approach (they have a SEED track, and I think they are really the only ED program in the country that has a SEED track)
Robert Wood Johnson in NJ accepts low BMIs, though they do not offer a harm reduction approach or SEED track. I think UNC Center for Excellence and John Hopkins and ERC and Laureate also accept low BMIs. Possibly Rogers too? Melrose? Rosewood? Columbia maybe? (Also Columbia’s ED program is free if you qualify for one of their research trials). I’ve heard Cornell accepts low BMIs
Curious if you have been able to admit somewhere yet? If not, I highly recommend checking out Sheppard Pratt in Maryland. I know they take low BMI.
Hi! I actually ended up being able to admit into Laureate. I’m a previous patient and the psychiatrist was willing to take me as a client without going to another location. I’ve been here about 3 weeks now
Hi E! This is the same person who made this post 4 months ago and I’m happy to report that I just left treatment and I’m doing amazing! I appreciate you asking if I had gotten in anywhere back in the fall. That small gesture means a lot
*TW: tubes*
I’m worried that my only options for care aren’t actually going to be helpful and I’m wondering if I should just consider self pay for somewhere like ERC? I have an HMO and my only options are Monte Nido Boston or Walden…. I’m in my 30s and have had an ED for 20 years and this is my first time in a HLOC. Neither of these programs sound supportive and my care team is worried I might need inpatient and Walden forcibly restrains patients. I struggle [with restrictive symptoms]. The 100% completion policy, 30 minutes to eat and all the restrictions of MN just sounds terrible. I kind of want a program that does tubes like ERC just to ease back into eating…
I would try Walden. They do not do restraints on adults unless court ordered to do so. Ng tubes can be placed and you have the right to accept or deny feeds. It really isn’t as bad as people make it out to be. I’ve been twice, on the 2nd floor which is adults and adolescents mixed. I’m 27 and felt like i had a voice and what i said mattered. I can answer any other questions you may have. I just left Walden a week ago.
Thank you so much! I’m going to be doing another intake with MN later this month and they had recommended residential. Should I bring up my concerns about completion? Would Laurel Hill transfer me to Walden if I was struggling?
Yes. If you need to step up they will suggest IP Walden.
Can you post a full review using the template regarding your stay at Walden?
What were some of the meal options?
Where the bathrooms suite-style?
Where groups mandatory?
Could you go into your room during the day and how many roommates did you have?
What is the electronics policy?
-i have a review posted on the Walden page and i think it’s pinned. It’s very recent!
all my answers are for the inpatient program on floor 2, the adolescent/young adult unit
1.) breakfast was on a 1 week rotation but you could sub the sides and sometimes the mains for every breakfast if you have a cool dietician. Breakfast rotation was pancakes, waffles, french toast, English muffin with egg and cheese, oatmeal, bagel/toast/cereal/muffin day, omelette day. Lunch and dinner was on a 3 week rotating schedule and you were allowed 5 sub meals a week where you can completely change a meal based off the sub list to fit your exchanges. If you have a cool dietician then sometimes you can get more than 5 sub meals a week. Sub meals included pb&j, chicken/tuna salad sandwich, cheeseburgers/veggie burgers, cheese/chicken/veggie quesadillas, hummus and cheese wrap, noddles, pasta and meat sauce, baked potatoes, mashed potatoes, baked sweet potato, broccoli, carrots, apple, banana, oranges, chocolate/vanilla ice cream, strawberry/vanilla yogurt, cheese sticks, chips, pretzels. Main meal examples were bbq beef sandwiches, general tso chicken and rice, chicken ceaser wraps, chicken tenders and french fries, turkey mashed potatoes and carrots, deli bar, chickpea loaf and potato. The food here is not good. I ate a lot of pb&js and yogurt.
2.) no, bathrooms were as followed, 3 shower only rooms, 4 half baths with toilet and sink only, 4 bathrooms with shower toilet and sink. This is shared among 27 people from 6:30 am to 8am but if you’re in village b, you can shower after 8am before breakfast since it’s later at 9am. You can also get a doctor order or charge nurses permission to shower at night.
3.) no groups are not mandatory. Since it’s inpatient, they bill your insurance for medical not psych so group involvement isn’t taken into consideration for insurance approval therefore not required. A lot of times only 2-4 people would show up to groups or sometimes groups just wouldn’t happen.
4.) yes you can go into your room whenever. All of the bedrooms are unlocked except for 2 which have locks and sometimes they use those if you use behaviors in your room since those 2 rooms are single rooms. There’s 10 double rooms and then there’s a separate wing that has 5 single rooms called east wing and it’s separated by a locked door but you can go to your rooms on that wing whenever since there is always a person on staff for that wing.
5.) you get phones 7-8pm, business group once a week for an hour where you can use phones/laptop, you can get a doctor order for more phone time; i did since i have a kid so i got an order for my phone from 5:15 to 8. Sometimes depending who works at night the tech time will get called late til like 830-9 especially on weekends. You can also apply for be strong be free which is where you commit to 3 goals with your team, going to 4 groups a day, and going to all meals/snacks. They’re really lax with this though. When you have be strong be free you get headphones during the day to listen to music and an extra hot beverage at afternoon snack. No one really follows up to make sure that you’re following the be strong be free rules so that’s kinda nice lol
I am desperately seeking treatment – hopefully a shorter term stay treating AN but with recent severe *tw* binge patterns. GI wise It’s terrible and I am feeling incredibly hopeless. I am vegan and also am looking for something that will help with my relationship to movement/excercise. I need somewhere that will accept low *tw* bmi. Any suggestions?
TW: tubes
Any ideas on house based residential that can accept G-tubes? And not Christian-based.
I’m also 35, so I am too old for the young adult places.
Hello! I need some recommendations. I am in a tough spot where I am not qualifying for somewhere like ACUTE, but I am also being denied from traditional inpatient due to my medical instability right now. Does anyone have any program Recs for medically acute patients? Thank you so much.
Rosewood, Princeton, and Cornell are a few places that can handle medical need but also aren’t just like a medical hospital.
Thank you so much I will look into these!
maybe Walden in MA
didn’t have the best experience at Walden but they did take me at a lower bmi than most inpatient psych places do, and were able to stabilize me there.
Sanford, Robert Wood Johnson
**TW: long-term tube feeding, harm reduction**
Hi all. It is totally fine if this isn’t allowed to be posted. I just got out of medical stabilization after 6 weeks followed by a week stay inpatient. I have a [long-term] GJ tube ***. I am old (55) and am looking for a virtual outpatient program just for people to talk to as I feel very alone – and the program would need to take a harm reduction approach. I have a dietitian and therapist but I can only see them once a week and I feel like I need more. My insurance won’t pay for virtual PHP but will do virtual IOP. I also have a job I love and don’t want to lose it so I am trying to work around it. Are there any such programs out there?
Do you know if Within Health accepts your insurance? They do virtual IOP, but don’t accept most insurances. There is a virtual program I think it’s called “Rock Recovery” or something like that which isn’t really IOP, I think it’s just a virtual support group that meets once a week and might have some meal support once a week, but it might help? Also, center for discovery has free online zoom support groups and free online zoom meal support a few times a week. You do not ever have to have gone to CFD to join their groups. ERC has also zoom support groups, so does ANAD, and The Alliance for Eating Disorders has tons of free virtual zoom support groups too. There is Equip, which I think offers virtual IOP. If you go on the main general forum, and scroll down a ways, I commented in reply to someone and I posted links to a ton of virtual support groups (including some of the ones I just mentioned to you). I’m exhausted and burnt out at the moment, and don’t have energy to find all the links to the various online support groups and put them here, but if you go on the main general forum and scroll down a WAYS (this was a long time ago, so you might have to scroll for a while), I posted a ton of links to free online zoom support groups. I think it was in reply to someone who posted asking about non traditional supports in Massachusetts?
When I have the energy, I will try to come back to this and post the links to the support groups I mentioned. I’m sorry, I just don’t have the energy right now. I struggle with chronic illness, and have been in a really bad flare up of one of my illnesses for a while, and I’m just not up to it at the moment, but you can scroll down a ways on the main forum and hopefully find my comment listing links to all the support groups (they’re all virtual and on zoom). Or you can go to ANAD’s website and easily find how to sign up for their groups, Center for Discovery’s website is pretty easy to find their virtual groups and weekly virtual meal support, and The Alliance for Eating Disorders website you can sign up for their virtual supports on their website
Also, Project Heal offers daily meal support virtual groups. you can apply to join on their website (though you are required to be at an outpatient level of care to join)
This is my comment that I was talking about where I linked to a bunch of free virtual zoom ED support groups, and some also offer free zoom meal support. I’m just copying and pasting my comment.
The Alliance for Eating Disorders offers free virtual zoom groups almost every day of the week. They also have an LGBT specific group, a BED specific group, a BIPOC support group, a mid life and beyond support group for people with EDs 40 and older, and a people in larger bodies specific group (which I go to regularly and is my favorite of their groups as someone with an ED who is in a larger body I often feel left out of or ostracized in traditional ED recovery spaces, and I find their larger bodies support group very pro-HAES and welcoming and supportive!)
https://www.allianceforeatingdisorders.com/groups/
Center for Discovery also has free virtual zoom groups. You do not have to be a former CFD patient to attend their groups. They also have a mental health free zoom support group, as well as a couple weekly meal support groups for people with ED’s, and a BED specific group.
https://centerfordiscovery.com/groups/
ANAD also offers free zoom peer led support groups as well! They have a ton of zoom support groups usually multiple groups daily, and also offer specific groups for specific populations such as LGBT, BIPOC, older adults, larger bodies, BED, chronic illness and disability, etc.
https://anad.org/get-help/about-our-support-groups/
ANAD also offers free peer support recovery mentors whom you meet with on a weekly basis. There are requirements for who qualifies for their peer support recovery mentor program. You must be at an outpatient level of care, not IOP or PHP, but just regular outpatient and I think you’re required to be seeing a therapist or dietician or receiving some sort of outpatient support other than just them. There might be other requirements, I’m not sure. I’ve never had a peer support mentor through them, but it sounds promising!
https://anad.org/get-help/request-a-recovery-mentor/
You can also contact ANAD to send you referrals for treatment. They have emailed me referrals to ED therapists and dieticians in the past. They also have a directory of outpatient ED providers!
https://anad.org/treatment-directory/
The Alliance for Eating Disorders also has a database of ED providers
http://www.findedhelp.com
You can contact them as well to send you referrals, and they will help you find OP providers or treatment centers that are an appropriate fit!
I think ERC also offers free virtual zoom support groups. There are also EDA (eating disorders anonymous) 12 step virtual free zoom groups. I personally don’t find the 12 step program helpful for my ED, but I know someone with an ED who attends the online EDA 12 step groups and finds them extremely helpful!
https://docs.google.com/spreadsheets/d/1htxMz7Z5_zl-y2n8H1njnQ2GzK_DBmmhWvt3rh6Gtjc/edit?gid=0#gid=0
This is a list of ANAD approved ED support groups led by licensed mental health providers
Someone else also mentioned the Wildflower Alliance is located in MA, but they also offer free virtual zoom support groups that you can attend from anywhere, though they are not ED specific. I have been to a few of their groups and liked them, though they are more general mental health groups and not ED specific.
Are there any house based residential programs for adults that allow *TW* feeding tubes *END TW*? (Drop and pull is not an option)
Selah House in Indiana.
From what I have heard they do drop and pull but I could be wrong.
What is “drop and pull?”. I am possibly going to Monte Nido in Houston area and they are house based res but offer NG tubes if needed. Now I am worried about what this method is.
It means they put a tube in when you need your feed and pull it after the feed is complete. So that means you could be having one “dropped” every time you need a feed vs them leaving it in.
They don’t drop and pull! (I was just there)
I was just there a few months ago and they do not do the drop and pull.
*TW tubes and medical issues*
my PCP is recommending a HLOC. I have a g/j tube but still eat some orally, as well as a central line for fluids (due to POTS, gastroparesis and other issues). My weight has decreased due to not running tube feeds. I’m still eating and mentally I’m not terribly entrenched in my ED. But I do need to gain weight and need to get back in the groove of running tube feeds. Aside from chronic illness things, I’m medically stable but weight puts me in the php or res area per apa guidelines.
I’ve previously been to ACUTE (I’d greatly like to avoid) and Torrance (not an option for variety of reasons). I already know places won’t do fluids or manage my central line (learned that a few years ago). But I haven’t sought care with a tube before. I don’t even know where to start. The two recommendations my PCP gave me didn’t work out (one referred to acute and the other doesn’t take my insurance)
I’m mid 20s and in AZ. Ideally staying on the west or southwest side but honestly open to anything. does anyone know of some virtual or short term options or honestly any suggestions?
I just left acute. They ended up pulling my central line despite being 100% tpn dependent after they lied to me. I’m happy to discuss further but I’d avoid if at all possible.
Can you please discuss this in more detail. I’m scheduled to go friday but I had very bad experiences with some of the staff and this sounds like you were mistreated very badly. Did they give reasoning to pull your central line thats awful.
Maybe Sanford? Alexian? St Joseph’s/ Ascension? Bronson Methodist? Center for change? If you’re in AZ, there’s Rosewood. ERC tends to take more medically complex cases. Maybe Melrose? I think you’d have a hard time finding a virtual program willing to accept you with your medical problems. You’re generally required to be medically stable and not on an IV or tube for most virtual programs. And if somewhere else has already referred you to Acute, that probably means you need a higher level of care than what a virtual program would normally offer. Maybe you could try Within Health? I’ve heard sometimes they take people who are mildly medically unstable? Though I’m not sure they’d accept anyone with a tube and a central line? Also, they’re not covered by most insurances and are extremely expensive without insurance, but it couldn’t hurt to try! If Within is not an option for you, most of the places I listed above are located in medical hospitals so they might be better able to help you! It’s on the east coast but I know John Hopkins can do IV’s. So can Robert wood Johnson. UNC Chapel Hill is known for medical stabilization, though it is a psych ward environment. Maybe Princeton?
Bronson Methodist does not follow ED protocol unless you’re PEDS. Adult has some rules but more of just a stability type thing. I finally do have tubes and line they don’t mess with it thankfully but our hospital has so much increase in admissions rn.
On the east coast, but Princeton might! It is a really good program. ( I’m in California but traveled east for treatment).
Hi!
I went to Princeton in 2016 and 2017, and I’m going back soon (on the waitlist). Would you be open to telling me a little about your experience there or leaving a review if you didn’t already? I’m curious about how they’ve changed since I was there and what I can/can’t pack etc
Does anyone know of any programs that offer just medical stabilization with an ED focus? I am located in MN but willing to go wherever.
For context (possible TW here), I have had my eating disorder on and off for almost 7 years. I have been to Melrose center 3x before and done outpatient through the Emily Program. But I’m not interested in pursuing either of those programs this time. I feel like I have a pretty good handle on all the DBT and CBT skills and everything else that therapeutically happens in an inpatient/res setting. I just want to be there for a few weeks for medical stabilization and getting back to eating 3meals and 3 snacks consistently. This most recent relapse has been extremely fast (my BMI is not super low at this point but my weight is dropping very quickly). So ideally a place that has earlier openings rather than later would also be ideal.
Maybe Ascension St. Joseph or Sanford?
Hey there! Your post is actually fine to be on the main Client General Forum! It is okay to have trigger warnings on the main page, it only needs to be here on the trigger warning subpage if it contains specific trigger warnings. Would you like me to cross-post this (or move it) to the main page? Up to you! You might get more responses there, but only if you are comfortable. Sorry for the confusing set up of this sub-page. It’s a new idea that I am trying out, and I haven’t done the best job with implementation. 🙂
If you look on the main general forum, there are a lot of people who’ve asked this question recently and there are a lot of recommendations. People are saying Center of change does harm reduction short term stays now, there’s Acute, Torrance and Bronson Methodist if you’re under 26, UPMC COPE, Lindner Center of HOPE, there’s a lot more recommendations for short term stabilization stays on the main general forum!
I’ve seen this mentioned a couple times now so I just want to clarify some of my previous posts — CFC’s model does not typically accommodate harm reduction. They make case-by-case exceptions but this isn’t part of their regular programming, so I wouldn’t go into the program assuming that’s what you’re going to get. This would have to be worked out with admissions, since it’s not something they offer outright. I had to do some personal outreach to get information about whether or not they could accommodate this.
Im assuming you are an adult? For adolescents there is children’s. I know they have taken people in their 20’s. If you find a hospital local that will stabilize, I personally would love to know too.
I’ve heard Roger’s and Princeton. I’m probably not the person to give advice. Thanks
Sanford!
*TW*
I know this is a long shot… but are there any PHP centers that accept very low BMIs? Thank you!!
I have heard that Sol Stone in NY does. I have seen ERC PHP programs take somewhat low BMI’s, and probably any programs connected directly to a hospital. UCSD might?
Also, Within Health Virtual used to take low BMI’s but I am not sure if they still do.
Sometimes a treatment center will recommend res/IP but if you talk to them about your circumstances they could allow for you to do PHP. For example, I saw this at Alsana (not that I recommend them).These are just a few thoughts.
Also, if you type “low bmi” in the search bar on EDTR usually you can find some info. Hope this helps.
not sure if this is helpful info or not, but i very recently did intakes with Within and ERC, and was told i would not be accepted due to lowish bmi. (ERC was willing to admit at a residential level, but not willing to allow PHP).
The best chance you’ll probably have is at PHPs that don’t have residential programs or inpatient ED units connected to them. They will be more likely to take full circumstances into account, because they don’t have the option to say that you have to start at their IP/Res before you can do their PHP. (Anon1S mentioned a couple – Sol Stone’s highest level of care is PHP, and UCSD has an extensive PHP program but doesn’t have an adult inpatient ED unit)
UCSD does not admit with low BMI but it’s a great program!
Hi,
I know that this is a long shot but I need help. I am 18 years old and have previously been to other RTCs for non-ED related mental health concerns and one for ED treatment. I was administratively discharged from all of them, so it made it very hard to find a place willing to accept me. I just got out of Renfrew- Spring Lane- RTC (About 1 month ago) and am at their PHP now. My team is thinking about kicking me out of their PHP for low meal compliance. I had some issues with some of the residents that were at Spring Lane when I was there and am not totaly sure if they are still there. I also had a very hard time getting my team at res to listen to me, which was incredibly frustrating. Me and my family live in the DC area and so far the only ones we have heard of are ERC and Dominion. ERC preiviously denied me and I had a very bad experience with dominion a few years ago. My parents also dont want it to be far due to the strain it puts on them financially and not being able to visit me (Which was one of the struggles I had at all my other RTCs). I really need to find a place and am hoping someone can help me out.
Thanks.
Hi Sara, I know it can be challenging to be denied treatment and I am proud of you for continuing to try. I am from the DC area and had a good experience at Aster Springs in Richmond but they do not tolerate noncompliance. But I highly recommend calling them. ERC Maryland would probably enable your restriction in their Res. The census is very high and staff support is low. The treatment team is good but that does not make up for the rest of the current problems there. They tend to let people slide by with restriction for a long while. CFD Mclean could be a good option. I know people who left recently who had a good experience. They also are a small center where you could get more individual care.ERC Bethesda is a 7 day a week PHP which might be more intensive than Renfrew?
Hope that helps!
Center for Discovery has residential locations in Northern VA (one for 10-18 and one for 18+). Aster Springs is in Richmond (res and PHP and I believe they have housing for PHP). Prosperity has a PHP in Northern VA and I had a good experience with their now-closed Charlottesville location, from what I’ve heard the Reston one is very similar. If you end up needing IP Princeton is not that far from DC (like ~3hrs) and I had good experiences with them. Sheppard Pratt is in Baltimore and I have heard mixed things (some people had a good experience some a bad one). I have heard mostly negative things about the other Baltimore IP, Johns Hopkins.
I’ve had very good experiences at Reflections at Dominion. If the bad experiences you’ve had at Dominion were on their general psych units, their ED unit is completely different and way better. If your negative experiences at Dominion were at Reflections ( their Ed unit), but on the children’s side if you were under 18 then, the adults side of Reflections is way better than the children’s side. Most of the problems the children’s side of reflections has, the adult side does not have those problems and is way better. Reflections is by far the best and most helpful ED program I’ve been to, and I’ve been to a lot.
I would not recommend Sheppard Pratt as I found it very traumatic and my experience there greatly worsened my PTSD. If you go on the general forum, and scroll down a ways I commented in reply to a question about Sheppard Pratt and described the traumatic things that happened there. But basically, at least when I was there, there was a lot of abuse and illegal stuff going on, and my experience at Sheppard Pratt greatly worsened my CPTSD.
I also have been to Prosperity’s IOP at their old location in Charlottesville that doesn’t exist anymore, and found it really helpful!!! So I assume their NOVA location is good as well!!
Also, I had a fairly good experience at inpatient at Robert wood Johnson, which is in NJ and not too far from DC
You can read my reviews of Reflections at Doninion and Robert wood Johnson on their pages
Possible tw!
so I’m a adult female who’s had a long standing eating disorder been in and out for years I’ve developed multiple chronic conditions due to this including gastroparesis pots and a past history with cancer I’m looking for something short term just to stabilize me anywhere in the USA my main thing is I am on tube feeds and the chances of me coming fully off of them are slim due to my chronic conditions but most places I’ve been to are always pushing to get it out is there anywhere that anyone knows of for a boost stay that will take my conditions seriously?
Acute? Ascension/St. Joseph’s? Melrose? Bronson Methodist maybe?
Also, I have been to Robert wood Johnson, and they tend to take more medically unstable patients than most inpatient ED units that are in a psych unit, as they are in a larger medical hospital. When I was there, patients frequently went to other sections of the hospital for various medical procedures and then came back.
Also, I have been to Reflections at Dominion Hospital and they also tend to take more medically unstable patients than most ED units that are in psych hospitals. When I was there in 2023, there was a woman there who had recently had 3 strokes, and they were still able to admit her, so they might possibly be more equipped to handle your medical conditions? Though sometimes, their admission coordination denies patients admission due to minor medical issues, so they’re a bit hit and miss
I think Sanford might
*TW*
does anyone know of any day programs or even virtual that will work with an adult who has a g and j tube and tpn for IV nutrition unrelated to my Ed, I’m ready to do the world and am looking for the support I need to do so. Thanks!
Within or equip might
Hi there! Does anyone have any suggestions for a good in patient center that is room based other than acute? I need a short term stabilization unit for like a week. My disability has run out from my last recent stay from inpatient/residential **TW** Concerning BMI but not really other medical issues currently known. Labs seemed ok last time. Just lots of fractures/osteoporosis. *END TW* Thanks!
How old are you? What type of insurance do you have? What are your geographic preferences/needs?
I’m 42 with Aetna and not really any geographical needs or preferences
This list isn’t all-inclusive, but it has a few options! https://edtreatmentreview.com/category/levels-of-care-loc/inpatient/room-based-treatment/
Any of the ones that are tagged with “Adult” but don’t specify “Young Adult Only” are places that you can check out as starting points! (Even if they say “Children’s” those ones also offer room-based medical stabilization for adults in the affiliated regular hospital.)
Thank you!! Do you know if you been to ACUTE before you’re more likely to get in quicker or does that have nothing to do with it?
Rise Recovery *had* a short-term, room-based program that did these sort of 7-10 day stays, but I recently read on here that they shut their ed stabilization program down, so I’m not sure of the status. It couldn’t hurt to call and ask, or check their page on here.
*TW for medical complications/tube*
Desperately seeking advice: I have a long standing ED (over 35 years of AN). I was doing ok and was stable and then in January developed a severe bowel obstruction that landed me in the hospital for a few weeks. It was determined that I needed a GJ tube and would be exclusively tube fed until cleared by the doctor. That hasn’t happened yet. My weight dropped and I am now severely malnourished. I have a job that I love and that we really need with 2 kids in college. I do not want to go into treatment at all…been there done that wayyyy too many times. So my question is are there any options for someone like me to get in home help such as visiting nurses who can monitor my health (draw blood, check vitals). I have a nutritionist and therapist but my pcp is no longer comfortable writing up for lab and I have had to go to the ER for monitoring of my electrolytes. I work in a school so I will have time in the summer (mid June) if I need to go somewhere strictly for medical stabilization and a jump start on doing what I need to do at home. I know this is a long shot but I thought I would ask here what options I may not have know about yet.
Hi! I have an in home nurse who comes to my house every day to help me with my medical problems and a physical disability I have (the main thing the in home nurse helps me with is ADL’s I cannot do on my own due to my physical disability). She is covered through a Medicaid waiver. In general, private insurance companies do not offer this service, and it is something you can only get through a Medicaid waiver.
You can also get skilled nursing to come to your house through a Medicaid waiver, and they do stuff like draw labs, check vitals, wound care, medical monitoring, etc, which I think is more what you’re asking about, but you would need to qualify for Medicaid to qualify for that service. Or Medicare. I think Medicare offers in home skilled nursing as well, but I don’t think private insurance typically covers those services. The only way to get an in home nurse without Medicaid or Medicare is to contact the home health agency you want help from directly and see if you can self pay, but it’s very expensive without insurance, and private insurances typically only covers those services like in home nursing in hospice care or end of life situations. So your best bet is to see if you qualify for home health care to be covered through Medicaid or Medicare. I can answer any questions you have about applying for home health care through Medicaid waiver, which is what I did! I’ve found my in home nurse extremely helpful!!
Thank you so much for your feedback. Unfortunately I don’t think I would qualify for medicaid if it is income based. It is so frustrating because the in home support you describe is exactly what I am looking for but we couldn’t afford out of pocket for it I am sure. .
I’m sorry It couldn’t hurt to attempt to see if your insurance would cover it
If you’re willing to go somewhere with distance/travel not being a barrier, Acute (in Denver) sounds like it’d be a great place for you since they work with all sorts of enteral feeding, are room-based, and have 24/7 medical monitoring. They’d be able to help you jump start your journey and manage GJ tube complications — I went there while I had one and while I never used it whilst there, it was always an option and we kept it in for multiple weeks before pulling it, just in case I’d ever need to use it.
In my opinion, Acute has always felt more like medical treatment and less like ED treatment since it’s not a res and has little to no group component and all the care is customized to you.
I have been to Acute a few times. My biggest worry is being held if I don’t agree to the step down they recommend. I loved my care there but ended up being put on a hold and sent somewhere I didn’t want to go. After speaking with my former social worker there, given my worries, she recommended Sanford which I may consider once summer break starts (I work in education and can not leave right now for any type of treatment).
*possible TW for tube feeding*
Need to go to treatment I think so I’m forced to comply with amounts of feed prescribed for my PEG tube (for severe GP) , any suggestions as to where I could go? Details in post ..
Had AN since I was a kid and I’m in my late 30s now.
I know I can’t hold myself accountable to recover at home, I need the immersion and the start of reprogramming my brain along with either being forced to comply with my tube feeds, and / or being challenged to eat more orally, finding some happy medium basically.
BMI is low normal so not UW and I was in the medical hospital for adult failure to thrive (related to Gastroparesis) and they topped me up on like IV every vitamin and mineral/Iron infusion etc so I came out of there feeling pretty good.
Then I got home and the ED got LOUD and now I’m realizing, I just don’t have the ability to stop at home/ I don’t have enough skills/treatment or anything to follow a meal plan etc..
Idk if this makes any sense but if anyone knows of a place that will take a patient with a pre existing PEG tube (J feeding) and work with them to either use the tube appropriately/ eat more orally and supplement with the tube, I would appreciate the recs.
Travel isn’t an issue. Have Medicare/Medicaid through Disability
I have been at Princeton with people who had PEG tubes for gastroparesis more than once
Good to know!
Hi! If you’re the same person who commented above that i replied to your comment about River Oaks, River Oaks does not tube and you are generally required to be medically stable or mostly medically stable to be in River Oaks ED unit, because it is located in a psychiatric hospital, not a medical hospital, so they don’t have the capabilies to deal with most most medical complications, and they don’t tube. If you went to River Oaks and needed a tube, they would transfer you to a higher level of care.
I don’t think Monte Nido or Center for Change accept patients with PEG tubes either. I think CFC only accepts patients with NG tubes, though I could be wrong about that as I have never been there, and I don’t think Monte Nido usually tubes, and if they do at certain locations, they would probably only allow NG tubes and not PEG tubes. You’d probably have to go to a medical stabilization program that’s located in a medical hospital (as opposed to a psychiatric hospital like River Oaks) first, and then once you are medically stabilized and no longer need the tube, you could step down to River Oaks or any of the other facilities you mentioned, but usually only medical stabilization programs that are located in medical hospitals will allow a PEG tubes.
Those types of programs typically don’t really do therapy or work on the underlying trauma because their goal is solely medical stabilization, but once you are stable and no longer require a tube, you could step down down to an IP program in a psych hospital like River Oaks or a residential facility that would work more on the underlying trauma and have more real individual therapy
I was at a Monte Nido before (RTC and PHP) with a patient who had a PEG tube, they should be able to accommodate!
*TW*
Hey,
so I have a low bmi, hypotension and hypoglycemia and I was looking into treatment options so I called Rogers and they wouldn’t take me not even to their inpatient program since they can’t handle medical complications. However Alsana recommended residential so I’m not sure which one to believe. Is Alsana a good program?
I don’t know much about Alsana, but Rogers inpatient program is in a psychiatric hospital. Often, inpatient ED units in psychiatric hospitals are unable to accept patients with significant mental complications, but usually ED inpatient units in medical (as opposed to psych) hospitals can typically accept patients with medical complications. Some residential facilities are able to accept patients with medical complications, but it usually depends on the specific facility and how severe the medical complications are
Alsana tends to offer people admission even if they really need inpatient and let them try, then transfer you to an inpatient facility later or discharge you. They do not have an inpatient program and do not have the level of medical support needed for a person who has been denied admission to a reputable inpatient program (Rogers). I’d encourage you to contact other Inpatient programs. It’s better to have your medical needs addressed from the start than to not have the support you need, struggle through the program for weeks asking for what isn’t offered until a transfer or discharge is required.
In my experience from attending Alsana, they are more hands off than other programs and aren’t going to push people to complete, which means that if you are not highly self-motivated, you may find the environment to be not very supportive. If comparing to others is a current issue, this program IMO, is worse than programs that show less favoritism to certain clients and are consistent in enforcing client treatment plans to all clients, not making meal completion happen if you feel like it. What is expected of clients from the treatment plans can vary based on favoritism and inconsistencies from staff.
Is there a particular region of the country you hope to find a program in? Are you looking for a program that accepts a certain type of insurance? Are you an adult or adolescent? The community here can definitely help you come up with some other inpatient options to look into if you would like that.
Contact Acute. They have the medical capability and expertise to care for you
Ditto to what Elizabeth and K said. Alsana is notorious for admitting people to their residential who need inpatient. Some of their locations don’t even have 24/7 nursing, but they are for-profit and don’t own their own inpatient program, so if they were to tell a prospective patient that they need inpatient, they won’t make money off of them. It is so dangerous. And there are some serious horror stories on here from people who admitted to Alsana with diabetes or medical complications related to blood sugar.
I would recommend looking into Laureate, Center for Change, Melrose Center, Klarman @ McLean Hospital, and Princeton, they are all known for being good at treating patients with blood-sugar related medical complications.
I can confirm that CFC is great with treating not only diabetic patients, but patients with unstable blood sugars! I’ve had issues with mine for ages and they were able to build an individualized protocol for treating my hypoglycemia.
Look into Laureate! I believe Rachel already mentioned this but from my experience they can deal with most issues and *TW* transfers to Saint Francis, the connected hospital, if needed. *end of tw*. They can do blood sugar checks reguarly and even accept many with diabetes too. Staff are lovely and it really helped me.
Hello, does anyone know any residential programs that have historically accepted patients with PEG tubes? Specifically looking for a program that is both for ED and trauma.
I think usually if you have a PEG tube, only inpatient programs in hospitals will accept you. I think most residential programs would not be medically equipped for a PEG tube
ViaMar in South Florida does
Are you on PEG for total nutrition or just partially (that is, can you eat by mouth at all?) I was in RTC and PHP at Monte Nido several years ago with someone who had a PEG tube, but she basically used it to supp when she couldn’t eat by mouth, She had ARFID. Maybe reach out, they might be able to work with you if you’re not on total nutrition via PEG.
has anyone been to atlanta or miami monte nidos? i am really hoping someone can provide any sort of review of the programs who have been there recently. also whats up with the houston location? is it res or inpatient- i know they can do ng tubes
MN Houston is residential
Houston/conroe is residential. You don’t get to walk around with your ng tube though. They drop it in the nurses office, bolus you, pull it. Repeat.
**mild TW for medical/physical symptoms of POTS (Postural Orthostatic Tachycardia Syndrome), which sometimes resemble ED symptoms. Note though that they are completely different diseases.**
hi
I am really struggling with my A-AN and my outpatient team wants my to go back to treatment. the problem is that last time I went to treatment I went to ERC Denver and was discharged early due to recurrent fainting from malnutrition and POTS. I since have gotten a central line and am on IV medication and hydration to manage my POTS and gastroparesis (from hEDS). I am not fainting (yet) but have come very close to it many times and am also experiencing tachycardia and bradycardia depending on my position. I am [body descriptor] so I am really feeling like I don’t need help but I’m starting to have signs of electrolyte imbalance and malnutrition that I haven’t experienced in a long time. I’m getting scared because logically I know how fast things can get bad, but also I feel like they aren’t bad enough yet that I need serious help.
Anyways, if anyone knows if ERC Denver would accept me with a central line please let me know. Otherwise if anyone has suggestions of where I could be treated please let me know that as well.
I am in recovery and also have POTS and a line for IV infusions. One of the things that actually helps me stay on track is knowing that if I ever DID relapse and needed treatment again, that I’d be screwed. I know that even if someone did take me, there’s no way that they would give me my IV fluids- they would just tell me to “drink more” so having my medical stuff actually keeps me motivated to stay in recovery. I hope that you can get back on track! You deserve it!
I feel like ERC Denver would be your best bet in terms of a program able to accommodate a central line but I don’t know that for sure. I would however be very wary of where ever says they can accommodate this and request to speak with the medical director of the entire program as well as the on-site medical/nursing director (these may be different people) to make sure it is crystal clear that you both have a central line and will be using it while in treatment of anywhere.
I had a close friend with several medical needs that went to a program that had assured her prior to admission that they could accommodate them. She arrived and suddenly they weren’t sure but the on-site staff decided they could make it work. A few weeks in, the program’s medical director “found out” (why they hadn’t known in the first place is beyond me) and she ended up being administratively discharged late in the evening with no notice. I say this not to scare you but to make sure you cover all your bases prior to accepting an admission just anywhere.
Personally, I have found it helpful to have my outpatient team reach out to make the initial inquiries in situations like this. As much as I hate acknowledging it, I think it helps remove the “oh, that’s just an ED behavior” or “oh well that’ll get better with nutrition” from the equation to have a provider pose the question (and it saves you from having to do it!)
thank you for your input. I spoke with ERC Denver and they can somewhat accommodate central lines. They are willing to flush the line as needed and give fluids in certain situations (like severe dehydration) but not as I currently am prescribed. Just thought I’d add this update in case anyone else needs it in the future.
I heard rosewood can handle situations like this.
Have you looked into to Denver Acute for medical stabilization? A medical stabilization program may be what you need before doing an IP program. I have heard that Rogers may be option as well, but I do not know much about their stabilization unit.
ERC ending up recommending medical stabilization for other reasons besides my central line and sent a referral to Denver ACUTE and I am currently waiting to hear back from them. I will update again after I have gotten confirmation from ACUTE or another medical stabilization unit.
-becca
That is great that ERC referred you to Acute. They are very responsive.and coordinated.
I am going to be air taking an air ambulance there hopefully this week. I got delayed because I needed to update my bloodwork for the air transport, but I ended up being admitted into the hospital for other health issues. Once I am released I will be in Acute.
I was at Acute about one and a half years ago. They are amazing and will save your life.
Hoping the best for you wherever you end up.
so ACUTE ended up saying that I don’t need their care and am good to start IP. however ERC Denver still wants me to be in medical stabilization. does anyone know of other medical stabilization programs that would allow me to go back to Denver for IP/res and can deal with a central line?
Possibly Rise? They are medical stabilization only and would definitely allow you to go back to Denver. I don’t have a ton of info on them—what I do know is secondhand—it is room based, hospital care (so I imagine a central line wouldn’t be an issue) but the level of acuity is significantly lower than what Acute can handle. They mismanaged several aspects of my friend’s care but, in retrospect, it was also probably not a good fit for them at the time. I know they really liked the staff and have overall good things to say about the program, it just ultimately wasn’t a great fit for the situation.
Another update:
My outpatient doctor is having me wean off of fluids and go to ERC Denver for treatment. If anything goes wrong ACUTE will be contacted by ERC. and if nothing goes wrong I will be able to have my central line removed when I get home!
*TW: SH/SI*
Hi, I am looking for an inpatient program that takes someone that is 12 years old female and needs a one to one observation for self harm / suicidal ideation and is fully reliant on an ng. The hospital has recommended Cumberland hospital in Virginia for her but I have only seen awful and horrifying reviews and am looking for somewhere that seems more reputable, safe, and obviously doesn’t have a millions dollar lawsuit against them. Thanks so much.
I don’t have much experience with this situation, so take this with a grain of salt. But the first place that came to mind was Roger’s in Wisconsin. They have an inpatient child/adolescent eating disorder unit. I’ve been there before and they do have 1:1’s for safety issues, I had one for a bit during my stay (although I am an adult, so I can’t fully speak for the child/adolescent unit). They also do have lots of other safety measures as well that can be individualized based on needs. I don’t know as much about being fully reliant on an ng tube, but it might be worth it to give them a call. Other people may have better suggestions but I just wanted to throw that one out there as a potential option!
If you live in VA, is Reflections at Dominion Hospital an option? Also, children’s hospital maybe? I think someone posted here recently about having a good experience with Cincinnati Children’s ED unit. Robert wood Johnson in NJ allows ng tubes and does 1:1’s.
I had a horrible and traumatic experience with Cumberland as a teen and a good experience with Princeton (although I was an adult by then). I don’t know if they’d take an adolescent with current SI/SH depending on the severity or fully reliant on a tube but Princeton does 1-to-1s if needed. I would think it’s worth a phone call Princeton is a good program especially compared to Cumberland. I have heard good things about CHOP in Philadelphia which is a higher level of care than Princeton, some start there and then step down to Princeton after. I don’t know if Cumberland still does this but when I was there they pretty much exclusively did drop and pull tubes, meaning they don’t leave it in they insert it, bolus the feed, and then remove it. Doing this up to 6 times per day for someone who is fully tube reliant would be very painful and traumatic and probably quickly cause permanent physical damage to the nose and throat.
I know Children’s Hospital in DC has room based treatment on a med/surg floor with ED protocol for ED patients who are under 18. I met a lot of people at Reflections who transferred there from being hospitalized at Children’s. I know they do ng tubs. I do not know about 1:1’s though
UCLA ED program
i disagree , UCLA is not equipped
Maybe UNC Center for excellence?
*tw*
anyone have any recs for inpatients/residentials for adults that do ng tubes in the new england area. currently doing an iop but it might not be enough as my metabolism is so screwed up my appetite is nonexistant even when i’m trying to eat. my team is starting to worry about medical stability and i’m desperate for any advice. last time i did intensive treatment i was a minor and had no say in anything or really any idea of what was going on
Would Princeton in NJ be too far? I get the best feedback on Princeton. Walden has very mixed reviews and typically is better to avoid if there are other options.
I was at Princeton and although they tube, they really avoid it at all costs. They require you to eat by mouth a specific amount before even considering to take you. They also have a crazy long wait list ( as of a month ago it was closed) so you might want to think of other options.
Robert Wood Johnson in NJ tubes
*Possible TW for thread: tubes*
Does anyone know which CFD locations can deal with tubes (preferably California?) and also same with Monte Nido. Thank you!
Unfortunately a bunch of Center for Discovery California locations have closed. I know as of last year there was one CFD Cali location that did accept patients with tubes (most CFD across the country don’t), but I’m not sure if it is one of the locations that is still open. How old are you? Different CFD locations treat different age ranges.
For Monte Nido, their Houston location is the main one that does, but maybe their Miami location does as well now?
CFD Del Mar does tubes, ages 15-25
None. Monte Nido and CFD don’t accept patients with tubes and do not utilize them.
That’s not true anymore. Monte Nido’s new Houston location is able to treat patients with higher acuity and does tubes. Patients at other locations are transferred there if they end up requiring an N/G.
And one CFD location in California does tubes as well. I don’t have time right now to look up which one, but you can do a comment search on the CFD California page (the comment search bar is directly above the comments section on each page) to see which one it is. I believe it was an older adolescent/young adult location. But there are some posts from community members that talk about which one it is.
Yup, Monte Nido Walden and Rosewood IP – and now, it sounds like Houston Res? – are, I believe, the only MN programs equipped to handle higher acuity/tubes/medical complexity. It’s rare to find a residential model that will do this.
Hello,
I was at multiple cfd’s over the years and heres the scoop on the tubes.
i was at la jolla and they did them but la jolla closed/merged with del mar. del mar does tubes.
La habra is ages 10-18 so I was there in 2019 and no tubes but I heard recently they started doing them.
Mesa Arizona did them but they were also adolescent only and i also heard they closed.
I am not aware of them doing them at any other locations. I would call and ask. I have some friends at granite bay and menlo park currently and they havent mentioned tubes to me so i am pretty sure they dont have them. Not sure about thousand oaks or lakewood or any of the others. id say its possible but unlikely.
Monte nido doesnt do tubes at all as far as i am aware. i went to clementine in 2019.
Thank you Ashley! I was hoping you would see this and be able to help out. ? ❤️
I’m being sent back to residential and because this time i am going more willingly i want to choose the best option for me and my ed. My team is currently looking at laureate and the meadows but i don’t know if those are the best options, ive been to res twice and ip about 6 times. i’ve been consistently tw** tube dependent*** in the first weeks/month of treatment so my team is stressing that i go somewhere with the ability to ng. just rly wanted to see if anyone had any programs they would recommend that are along these lines. I’m 17 so it would be adolescent. if anyone could help me i would so so so appreciate it.
Oh wouldn’t go to Laureate if you need to be on ng. In my experience they try really hard to not rely on tubes and can be pretty pushy/borderline shame-y about oral completion/not being on a tube.
I had a very different experience as an adolescent. I never felt shamed or belittled for not completing orally, as long as I was compliant with supplements or feeds.
That’s awesome! It seemed like folks on the adolescent side generally had a better experience than the adults in terms of staff interactions. y’all had the better dieticians too! i saw L when my adult dietician abruptly left for a week and she was INCREDIBLE i was so jealous haha
omg thank you so much this makes me feel way way better i think laureate is my top rn
Laureate’s adolescent program is amazing. While their adult program is also fantastic, some reviews do highlight negative aspects. Having been there multiple times and familiar with the city program, I can say these issues largely stem from decisions made by one specific staff member in the adult program. This staff member has no involvement with the adolescent program, so any complaints about Laureate are generally not applicable to the adolescent side.
As someone who had an NG tube in the adult unit, I never felt shamed for needing it. Laureate recognizes the importance of eating orally for recovery and works diligently to support patients in transitioning from the tube to oral food. During my time there, I worked hard to increase my oral intake because I wanted to recover, so I can’t speak to the experience of those who refuse to eat at all. Laureate understands that eating disorders are challenging illnesses and provides substantial support for recovery.
One aspect that surprises many is the positive atmosphere among peers. Unlike other programs where there’s competition to be the sickest, Laureate fosters an environment where peers encourage each other to get better and fight the eating disorder. It’s not seen as cool to be the sickest. If someone is used to a competitive environment where being the sickest or staying on a tube the longest is a goal, I can see why they’d see Laureate as being shaming. It’s just not seen as cool there to use behaviors.
So my comment didn’t come from a place of thinking having a tube is cool, it came from witnessing staff tell a patient she wasn’t trying, wasting everyone’s time, and doing it for attention when she couldn’t compete her meals orally. To me, that is shaming. But, I’m glad that wasn’t your experience.
Ugh, I’m sorry. I did get that vibe from one staff member (the one stated above) but my therapist, dietitian, peers and the rest of the staff were very supportive.
yeahhhhh she was a lot. however i trust the care and expertise of the staff there regardless and even though i had a pretty rough experience because of said clinician i would absolutely return if i needed to get help again. i think for me the quality of the medical and support staff outweighed how unpleasant she was and made it easier to focus on that, rather than her toxicity.
thank you so so much i’m honestly going into this program with more hope than ever before, i do want help but it’s just so hard but i feel like this program is my best shot at staying alive.