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Can you post what meals, groups, the schedule, or the rules were like? You’re awesome, just share that part!
*I can empathize with getting out of treatment, being really frustrated with everything and not having a magic cure. I ask that you please take a step back and breathe and try to write, ask, etc., from your wise mind.
You are all courageous, both those seeking treatment and those providing reviews. Thank you!
Hi all! The forum is getting pretty dominated by posts that require Trigger Warnings (TW). As a solution, I have created a Client General Forum sub-page for posts most likely to be triggering to the majority of people (posts that mention *TW*low bmi*END TW* and/or *TW*tubes of any kind*END TW*). This will hopefully make this forum easier to navigate!
Click here for subpage –> TRIGGER WARNING SUBPAGE OF GENERAL FORUM.
** I’ve cross posted! **
I’m looking to see if anyone else has experienced this with Ascension St. Joseph EDU in Chicago, IL?
Has anyone else run into an issue like this? My PCP has been trying to coordinate with them but hasn’t gotten any feedback or a response with the three attempts that she’s made. I’m now wondering (honestly worried) if I need to be admitted to my local hospital (she’s aware of this) to help facilitate being transferred there later on.
Looking for a comprehensive program that addresses both Trauma/PTSD and eating disorders. Hoping for recommendations.
Hi I have a question regarding residentials in NY that I hope someone could help me out with!! I am looking for a Res. as there isn’t many in NJ and got referred to Monte Nido. Is this a good choice? I would be in their adult program, also this would be first ED based program I would be admitted to. Is there a better option that I should look into rather than Monte Nido? If not which facility would you recommend?
I went to Monte nido rockland and loved it!
The only residential program in NJ is Hidden River which accepts all age females at this point. I am actually scheduled to admit to their program. Monte Nido has about 3 locations in various parts of NY (Rockland, Westchester, and Western NY). Center For Discovery has an adult location in CT. If you’re willing to go a bit south, there’s an ERC in the Baltimore area, as well as Aster Springs in Richmond, VA. I’ve looked into all the above, but decided against going to a facility that is part of a huge, corporate network, i.e., ERC, Monte Nido, CFD, etc. The pros of these “chains” are they have a large pool of resources to draw from BUT programs may be more cookie cutter, staffing issues, etc. Seems to me a large portion of the budget for these chains goes to marketing. I tried to get information about ERC program for women over 40 in Texas, and no one could tell me much more than what I could read on their website. A privately owned facility has more leeway to be individualized (not a given though, all depends on who runs the program and their particular focus) and you don’t have disgruntled staff bowing to corporate nonsense.
I am waiting on clearance for Hidden River. I have heard good things…
Sorry the site keeps crashing randomly for a few minutes. (It’s not just in your head lol!) If it doesn’t load, give it up to an hour and then refresh. If it is ever down for more than an hour email me at eatingdisordertreatmentreviews@gmail.com to let me know. It should be fixed soon though!
URGENT
Having a psychiatric emergency in Central IL (manic episode that may not stop without intervention largely because of my inability fo keep sabotaging myself with substances) I’m a senior (50) ANBP and I’m not interested in long term eating disorder treatment because tbh I’m a realist but my experieces with my local psych ward over the years have been miserable partly due to their complete lack of ED awareness (and als because there is literally nothing to do there all day but watch cable television- no groups, no library, they seize my kindle- which I use because I’m OLD and can’t see small print)
It’s fucking torture being there and I basically do anything within this mortal realm to avoif admission there.
I remember reading here a few months ago that there was a place in the city (Chicago) with an ED unit in a medical hospital and someone asserted that “they are a really good place to go with co-moribidities” Pretty sure it was called St JOsephs and admit was available only via the ED or direct admit from your physician. Does this ring a bell for anyone?
Like I said this is kind of a psychiatric emergency- I can’t just take the batteries out so I would appreciate any/all responses suggestions ASAP so help my god forever and ever amen
Ascension St. Joseph’s Hospital in Chicago, IL.
The address is 2900 N Lake Shore Dr Chicago, IL 60657
The Emergency Room entrance is “Door 2.”
Tell them you are having a psychiatric emergency from a manic episode so need to be admitted right away, but that you also have an eating disorder and stabilizing your ED is actually the main issue so you’d like to do the ED unit.
Here is the link for their ED unit: https://healthcare.ascension.org/locations/illinois/ilchi/chicago-ascension-saint-joseph-chicago/departments/eating-disorder-unit
By the way, I’ve been to St. Joseph’s a bunch, before the ED unit opened, and always admitted through the ER. The ER staff is really wonderful.
I assume they take medicad? I’m on Meridian now.
I also live about2.5 hours drive from there which puts me in kind of a picke.
Also I’m not really seeking treatment for my ed, the primary issue is the mania. *TW* I have resigned myself to the fact that my ed is forever. *end TW*
I just think it would be easier to be somewhere where- for instance- they have an RD who’s more informed showing me a generic MyPlate and saying “Hello Ms. Moron, welcome to Remedial Nutrition 100.1.” The place my town if you get there too late to order your own breakfast one of the techs orders for you and last time I was there he ordered me Coke with my breakfast. Which is funny if you have a sense humor about food but an asshole move for somebody with an eating disorder. I’m a funny asshole, too, so I understand but at the time it really sucked and it’s indicative of the complete and total lack of ED awareness there is outside our little bubble
It made sense to me! Haha, for what that’s worth.
Yep they take Medicaid. The ED unit is a stabilization one, so it would be compatible with harm reduction which it sounds like is what you are looking for. Before the ED unit, I created a sort of ED protocol for myself for the regular psych unit, so maybe you could do that too if you did the regular psych unit. (Mostly things like having a wider variety of snacks, being able to hold things from meals to use as snacks or to finish later, having Ensure/Boost available, being able to have a PB&J if I accidentally slept through a meal, orthostatic vitals, only being weighed backwards and no one allowed to tell me my weight, option to eat at nurses station, meeting with the ED-informed nutritionist as needed, those are the ones I remember off the top of my head.)
Depending on where you are located, Ascension Alexian Brothers or Linden Oaks may be closer, and they both take Medicaid. OSF St. Francis in Central IL has an IOP and PHP ED program, but no IP ED unit, so maybe their psych unit would still be ED informed?
Peoria would definitely be closer but you hear nightmares about their program.
The mania is still sizzling but it’s dying down (my recreational activities were exacerbating it) so hopefully I’ll be okay. Tysm for your support and replies!
jesus christ god bless you if you can disentangle that comment
i am in recovery and would like to help support someone in their recovery! Horses helped saved my life and I want to be able to share this experience.
i have a horse that would be a great healer. We are located in North San Diego County California.
if you or someone you know want to connect for equine therapy, let me know!
We are all in this together
[* admin note: longtime community member]
I am moving San Diego County in June, re-committed to recovery in 2022. I’ve always loved horses. I got to take some riding lessons and go to a horse back riding summer camp as a preteen where I took care of the horse I rode while I was there. Caring for the horse (grooming, feeding, cleaning tack, mucking the stall) was all stuff I enjoyed and had wanted to do for my recovery. Where I currently live, I could not find anything that. While in the earlier phases of recovery, there was a place I could have volunteered, but I was not stable enough yet. I have not rode a horse since I was 18 years old besides maybe one trail ride. I am 39 (female) now, also long-time community member here. I do not know anything about equine therapy. I am interested.
This is wonderful! Rachel, can you please share my email with this member? ❤️
Yep!
does anyone know of any RTC’s that allow clients to attend ketamine/spravato sessions. or somewhere that offers it in house that is not an inpatient type program. I was able to attend outside spravato appointments at a monte nido location, but am not looking to return there
I have heard that some ERC locations allow ketamine treatments, but I’m not sure as I’ve never been there personally. I’ve also heard that Integrative Life Center allows ketamine treatments, but I haven’t been there either, so can’t say for sure, but I remember seeing someone on here say they did ketamine infusions while there.
If Pathlight offers it, I would imagine ERC does as well.
Cfd
I know erc does, at least in chicago.
did you have a poor experience at monte nido?
Aster Springs (Virginia RTC at least) will allow you to attend spravato or ketamine sessions offsite. There is a Greenbrook location convenient to both houses for spravato and I believe a ketamine provider nearby as well. They will arrange transportation to/from. Infinitely easier if you are able to set up these appointments prior to your admission (or at least have started the process of doing so)—happy to provide more info if you’d like.
ERC does, in Denver, but they are more of an inpatient setting
I have a friend who did ketamine while at ERC Dallas, Baylor location. This was in 2023.
The Emily Program in North Carolina does
I tried to set up outside Spravato appointments while at Aster Springs Nashville, but it ended up being a huge hassle and I ended up just going without Spravato for the 8 weeks I was there. They were willing to let me do it (as far as I know) but didn’t offer any assistance in setting it up.
Does anyone know of good medical stabilisation units on the East Coast for someone in her 20s that are not Walden, Princeton (told me they do not do medical stabilisation), Johns Hopkins, NYP or RWJ?
Princeton’s program is in a medical hospital, how can they not do medical stabilization? You’d likely have to go to ACUTE or out to California for true medical stabilization.
That’s crazy, because I have been to Princeton many times strictly for medical stabilization!
I don’t know, I called them because my intake with a residential let me know I needed medical stabilisation before admitting and recommended Princeton but they told me they don’t do stabilisation and refer out to John’s Hopkins or Sheppard Pratt.
They are far more equipped for medical than Sheppard Pratt! Try RWJ Barnabas…
Sheppard Pratt doesn’t do medical stabilization or even really treat medical issues at all. John Hopkins would be better for medical stabilization, and I had a really good experience at RWJ!
And when I was at RWJ, there were a lot of people there who’d been denied admission by Princeton, so I know they accept people that Princeton doesn’t sometimes
Even though Princeton’s ED unit is technically in a hospital, they don’t offer true medical stabilization on the unit itself.
What general region of the east coast are you in?
Northeast, just outside of what’s considered New England.
UNC center for excellence might. Their ED unit is located in a psych unit, but it is in a larger medical hospital, and I have heard they are good with medical complications. I remember hearing about a new ED protocol at a hospital in MA on here, but I think it was only for people local to that part of MA, but if you’re in MA, I think if you scroll down a ways, you’ll eventually see the post I’m talking about. I know you said no RWJ, but if you ending up having to choose one of the programs you don’t want to go to because there may not be anywhere else on the east coast that does medical stabilizations, so if it gets to the point, where you have to choose one of those programs, I can answer any questions you have about RWJ! They’re not on the east coast, but depending on what level of medical stabilization you need, if it’s nothing major, Rogers IP might be worth looking into. ERC might be another option. I know they tend to handle more serious medical complications than lots of other ED programs.
Actually, now that I think about it, I tried to go to UNC Center of Excellence a few years ago, and they told me no, and it was so long ago I don’t remember the exact reason- this was in 2020, so six years ago, but I think if I remember correctly that it was because I wasn’t medically unstable enough for their program, which implies that they definitely do medical stabilizations, if I’m remembering correctly. They do have an age cap of 26, but I’ve heard they will make exceptions case by case.
UNC won’t handle most medical complications on their ED unit. They’ll send you to a medical unit at UNC until you’re stable enough to come back. They will only do ng tubes and IV fluids on the ED unit.
Since 2002 I’ve been to 8 different facilities specifically for eating disorder care. Some with multiple admissions. I also have a rather lengthy “resume” of psych stays over the years, which I’m only mentioning to highlight years of treatment trauma. I had a nice stretch of recovery from for a few years (5!) but am in a serious relapse now. My team wants me to consider a higher level of care but I am hesitant because I’ve had a lot of treatment already and I am concerned about a possible trauma response going back into that environment. I’m also nowhere near my lowest weight. I’ve spoken to Laureate and Center for Discovery so far and my overall impression of CFD is that it may be too much of an entry level type facility – not individualized enough to sustain someone who has been around the block. In general I am wary of big programs with multiple locations as I fear they may be too cookie cutter. While I am intrigued that ERC has a track for women over 40, it’s still ERC, if you know what I mean! I honestly don’t know what would be best. Return to RWJ or similar for a quick stabilization and resume my life or really invest the time in a residential program. Is there such a thing as a program that would be 1. Understanding of the needs of a woman in her late 40’s, 2. Sensitive to my past experiences, 3. Strengths based and empowering approach, devoid of demands, punishment, and rooted in empathy/understanding. Thanks for your input.
i don’t want to give too much info so that they’re not bombed with calls but give new circle in Alabama a call. They are a new treatment center that isn’t owned by private equity and they have open beds, and sound very individualized. I spoke to Larry with admissions there and he was honest one of the nicest people I’ve talked to from a treatment center on the phone and I’ve spoken to over 20 places in the past few months trying to find places that would take my insurance.
Bright road recovery in CA is a small, privately owned (i think?) treatment center that has been getting really good reviews on here, and is supposed to be good with trauma. I thought the reviews seemed suspicious, but Rachel said it’s because she asked them to ask patients to leave reviews since there isn’t much info out there about them. Maybe also Haven of Hope (formerly Fairhaven)?
My dietitian also mentioned Haven of Hope!
They have a current 4 week wait
Maybe We Conquer Together? I spoke to them on the phone a while ago, and they were really nice, and I think they cap the amount of patients they have at a time at something like 6-8, so they’re very small, which hopefully means more individualized attention
Update: There are still 10 people ahead of me on the Laureate waitlist which would mean another estimated 6 weeks. I don’t want to wait at this point, I’m barely functioning as is. I ruled out ERC and CFD pretty quickly. Which left me with Rogers, Hidden River, and CFC. I decided it would best for my already strained marriage that I stay as close to home as possible. The end result is I will be admitting to Hidden River.
Can sometime do a review of Galen hope without the housing option?
Does anyone have experience with Charlie Health? *possible TW: SH* In my case, it would be for primary mental health (SH) rather than ED, although I’m anticipating the ED behaviors coming up more as I decrease the SH, so they would need to be able to support that aspect as well… *END TW*
I’m just adding a version with the specific trigger redacted to make sure everyone sees the post:*
Does anyone have experience with Charlie Health? In my case, it would be for primary mental health rather than ED, although I’m anticipating the ED behaviors coming up more as [my mental health improves], so they would need to be able to support that aspect as well…
*note: i feel terrible about having added the warning, i’m so sorry! OP i’ve been where you are. ❤️ so just in case you are like me and might worry about it, i want to make it clear to everyone that OP didn’t break a single rule in their post, not even accidentally, and that they followed every rule and guideline to the letter.
I have no experience with Charlie health, but I just wanted to let you know if you’re not already aware of it- Alexian brothers in Chicago has a SH/ED combined inpatient psych unit. I know maybe that’s not what you’re looking for, but I just wanted to let you know about it! And also, I’m so sorry you’re struggling with that. I struggle with that too, as well as my ED, and it’s so so hard. Sending you good thoughts ❤️
(OP here)
I appreciate the recommendation! I’m trying to find an option that will allow me to stay in school (and tbh I also don’t feel that I “need” inpatient at this time), but I will definitely keep that program in mind if I start looking into a higher level of care ❤️
Monte Nido Rockland??
Hi everyone, I’m having a heck of a time finding any reviews/feedback for the Rockland location in New City, NY. Has anyone been or know of anyone who has been that can provide some feedback? Thanks so much!
*possible tw for weight restoration discussion (pro-recovery!)*
programs that don’t overshoot weight? i love monte nido but have been overshot significantly every time i go which keeps leading to relapse. looking for a program w a more moderate approach to restoration?
TW for further mentions of weight, set point, + IBW:
CFC put me on a maintenance meal plan around my actual “set point” (which was based on growth charts, and is lower than the IBW for my height… but is also where I’ve been able to maintain while in genuine recovery, eating intuitively, etc). I discharged around a month later still within the range i “normally” maintain while in recovery. But I know I’ve heard mixed reviews re:CFC’s weight restoration expectations, so YMMV!
Depending on your circumstances, it may be worth looking into a program with a SEED/harm reduction track (e.g. Sanford, potentially Princeton)
Princeton doesn’t have a SEED program anymore but is more flexible than they were prior to having the SEED program. They have switched from using a standardized IBW calculation to calculating based on growth charts, weight pre-ed/in periods of recovery, etc that is different for everyone. They asked me about my weight history, family member’s weights, etc and for me the goal came out the same as the old system.
Hi, I was wondering if anyone has been or knows more about Bright Road Recovery in Claremont, CA? I have an intake with them tomorrow and wanted to know more about it? (Already checked their page but it doesn’t have many reviews).
How did the intake go? Did you get any information about the program?
Hi, I am 25 years old however I have received the best help and treatment for inpatient stabilization at Children’s Hospital of Colorado many times. When I was in my teens and even as 22 year-old. Although now I am 25 and I am doubtful that they will help me, but it is the only place I would feel comfortable and safe going due to many other previous traumas. Does anyone know or maybe Rachel? Can you help me figure out who the best person/how I can ask a doctor or get through to anything except for the front desk to discuss my situation and ask if an exception can be made?
Is there anywhere similar to the concept of ACUTE where it’s room based that you stay in your room and don’t have to interact with other patients that accepts Medicare? I can’t go back to ACUTE bcuz I have Medicare now but I’m a lot older now and would prefer the same concept of being able to stay in my room and not have to do groups
how old are you? It depends on your age if your <26 you have many options
No I’m mid 30’s
I am not aware of anything, and I’ve done a lot of research into every program I can find that takes Medicare. The closest two things, unless I’m unaware of something, would be a regular medical hospital (but it can be very hard to convince one to admit you, and the few that have a specific ED protocol tend to be catered to locals and may even refuse people from further away) and Princeton. Princeton doesn’t force groups and rooms are open all day but I expect they’d be encouraging you to go your whole stay. Most people eat in the dining hall with everyone else, sometimes people eat in their rooms for various reasons but I couldn’t tell you if you’d be able to have that accommodated. I recall someone on this site who had Medicare having their outpatient team convince Princeton to let them be room-based their whole stay, but that may have been when the SEED program was running? They are quite individualized these days and it depends on what team you get and your specific situation how much they’ll work with you. YMMV.
just wanted to post a PSA in case it might help anyone: the Gaudiani Clinic just opened up their applications for discounted care through a nonprofit. Applications are open through the end of February and cover ~90% of clinic fees. i can only speak to my own experiences, but as a current patient, having an informed and experienced PCP who understands all of the physical and mental complications of an ED has been extremely helpful, and the whole team has treated me with so much warmth and kindness. i know there are so many people who are looking for this kind of care, but are prevented by the barrier of cost, so i wanted to share in case this could help someone access treatment.
https://www.gaudianiclinic.com/discounted-care
Got excited until i saw my state wasn’t listed and no Medicare only private insurance. Seems like it’s clear where her values truly lay.
no because literally, how does one even begin to justify a $2-3000 consultation cost (plus their continuing client fees that would have you at >$5000 per month)?? I understand wanting to work with a medical provider who truly understands EDs, but I just cannot get behind that absurdly-high cost for basic services :/
If you see a review page that needs its new review/s pinned and/or old review/s unpinned, please reply to this post with the name or link! I will delete your reply after I have fixed the page, and edit this post to reflect that it has been fixed.
Review pages fixed so far:
(Thank you Nonnie for bringing this issue to my attention!)
Not looking for a treatment center recommendation, but curious if anyone has used a recovery coach before and what they thought. If I do, it would be discharging from a residential treatment center.
I have and I think it can be beneficial, but also keep in mind that they don’t have therapy degrees and some of the things they do/say aren’t always from a therapeutic lens. Like they know what they’re talking about because they’ve been through it themselves but they tend to just speak from their own personal experience rather than an overall therapeutic perspective… if that makes sense. And sometimes I’ve seen that their own feelings and backgrounds tend to unfortunately guide the way. It’s nice to have the 24/7 support and to talk to someone who personally gets it and understands, but I felt pushed, misread, and given up on at times with the coaches I’ve worked with in the past because I was struggling at certain points and their support wasn’t ’curing me’.
I have worked with one (in addition to a full outpatient team) for over a year now. She helps me with setting and meeting goals very specific to where I am right now, even if those goals are just “make time to journal each day this week.” Then she has daily text support always available for emotional support as things come up. I’ve found it to be a really good help for those day to day needs as I do deeper trauma work in therapy.
Question for the community:
I’ve been to treatment many, many times now and am looking to go back again. Do you find going back to the same facility as helpful? Does anyone have recommendations on good treatment centers around the country for anorexia struggles?
I keep going back to the same place because I do always find it helpful and get something out of the stay even though I’ve done that program (Princeton) multiple times. However, my options are severely limited due to insurance. If I had insurance that covered a wider variety of programs I would have absolutely tried elsewhere with a different approach by now.
I went to the same treatment center twice! (It was not specifically an ED treatment center, but they did treat secondary eating disorders) The second time I went I was at a different house, so I had a different team, and obviously a different group of clients. I did find it helpful to get a different perspective of things, and a different approach from clinical. I knew going into it that I had a really positive experience the first time I went and that stay had really helped, so I felt more comfortable going a second time. I also reached out to other clients that ended up going back a second or third time and had heard overwhelmingly positive things from them too.
I don’t have any facility recs as I have been out of treatment for 11yrs now…but just wanted to say I think more often than not switching things up & trying somewhere new is best.
There’s an element of comfort returning to where you’ve been, which seems like a good thing but it’s usually good for your ED but bad for recovery.
After struggling for 20 years and being to many facilities multiple times, it was a new facility with a different approach that finally helped me enter (& remain in) recovery.
It depends on the program. I returned to ERC Dallas and Denver for a good 5 years and never saw any improvement. Then I tried Center for Change and it was the most helpful place I’ve ever been, so I’ve returned there and found it helpful even in my second and third admissions there. I highly recommend CFC above just about any other program. CFC and Laureate tend to have the best reviews here.
I have the choice between rwj somerset and ny pres. To be admitted next week. How do these programs differ, which would u recommend which is less traumatic. Length of stay. Was just in residential for a little over two months and weight platued so they recommend hloc trying to find a place that isn’t too long and the place I was at really traumatized me.
Does anyone take MediCal or MediCare???
For which level of care? And how old is the person seeking treatment? This website is great to search that kinda thing because there’s tags for Medicare/caid programs
which county medi-cal?
Do trauma informed medical stabilization units exist? Not psych inpatient
The only official medical stabilization program is Denver ACUTE unfortunately. They’re the only program that bills under medical benefits, not psych. They’re definitely not trauma informed based on reviews, though.
Specifically which locations for adults of Monte Nido accept Medicare? TIA!
I know for a fact Walden inpatient takes Medicare. There were several people who were there with Medicare
Residential treatment? Unfortunately, traditional Medicare, the federal insurance program for aged and disabled, does not cover residential treatment at all – only inpatient level of care, hospital based php and outpatient appointments (but not an outpatient dietitian unless you have diabetes or kidney disease). Medicaid, the state by state run insurance program for the indigent may cover residential, but not many facilities take it because of low reimbursement rates.
I’ve had Medicare for the last 17 years and your description of what it covers especially when it comes to ED treatment is by far the best I’ve seen!
thanks! It comes from both personal and professional experience at this point (I do medical billing for mental health and nutrition). I fought my way off disability and lost Medicare about 3 years ago. I am now covered under my spouses employer sponsored commercial PPO. The Medicare was a real problem when I was trying to access residential in 2019, even as a secondary to my husband’s plan, facilities would not accept me.
No on the Monte Nido website it says they inpatient and the tags here say Medicare and Medicaid but it’s confusing which locations
Medicare only covers inpatient, not residential, so only the Walden and/or Rosewood affiliated programs do. When I checked last year I only had the Deadham, Mass unit covered, but I am in Idaho so things get weird sometimes. That said, it is definitley limited to the inpatient units.
So just the Deadham location as far as you know?
yes
Yes just the Dedham location because it has 2 IP units for adults
In 2009 at 23, I went to Walden Behavioral Care – inpatient for two weeks when they were still in Waltham, Mass before being bought by Monte Nido. I only had Medicare at the time (the red, white and blue card), way before getting an advantage plan.
Hi All – I posted about a month ago about my 70 year old mother who suffers from anorexia nervosa (amongst other medical conditions) and has had a steadily declining BMI for 10+ years. She recognizes the problem and tries hard to manage a handful of professionals herself (dietitian, psychiatrist, therapist, GI specialist, etc.) but none will see her frequently and it’s clearly too much for her to handle.
The Virtue Recovery Center in Las Vegas is a great fit for her requirements, but now it has come down to “I just don’t want to go!!” with no other reasoning. Understandably so.
Does anyone know an intervention specialist or some professional that can speak with her with the intention of getting her to go to Virtue? She says nobody understands what she is going through, including the direct family.
Thank you!!
Posting for a friend!
Kaiser does not have an IP ED treatment facility ( or even OP). Does anyone know if they will cover another facility for Kaiser members? Maybe a single case agreement?
When I was at CFD they took Kaiser clients in res, no idea if that’s still the case. I think Reasons used to take MediCal, which Kaiser sometimes is, so they might. I think Alsana took Kaiser at one point. Is it NorCal Kaiser or SoCal? (silly as it may seem they’re different insurances and will cover different stuff). NorCal Kaiser may cover one of the academic med centers up there like UCSF or Stanford, SoCal may cover the academic med centers down here like UCLA/UCSD.
Hi all, I’m curious if anyone knows of any good stabilization programs for adults 30 and over I’m looking in California but I’m willing to go out of state if I have to do so, I’m also looking for a high quality residential as well that has really great reviews I’m desperate if anyone can help
Unfortunately there aren’t any ED medical stabilization programs in California for adults over 25. Some hospitals can help from the medical point of view, but there’s no program in the state unfortunately. i hope you were able to find some help since you posted this ❤️
Hi Mandy do you know of any, in general out of state or even country
Of course!! All of the following places take people age 30+. I don’t know any out of the country, so these are all in the US:
In CA:
– Providence St. Joseph’s Hospital is really efficient if you need to go through their ER and, in general, I’ve found they take my abnormal vitals/labs/symptoms way more seriously than other hospitals like UCLA. It is not an ED program, just a regular hospital, so they may only keep you for a few days, then you’d need to follow up for residential or inpatient.
Out of State-
-I just posted a lengthy review of Princeton in NJ. I don’t necessarily recommend this program if you have several chronic illness (I do, and I just left there). But read through that review though and see if it may be a good fit anyway! If you’re desperate, it has potential to help so definitely don’t rule it out. It’s hospital based, but not medical stabilization. It is a psych-based program.
-Sanford in North Dakota. I haven’t gone there, but it’s also in a hospital setting. They have less beds though, so wait-lists usually tend to be longer.
– Laureate in Tulsa, OK. I haven’t gone here either, but the reviews are generally positive, and someone just posted an estimated waitlist duration a few days ago. This is also hospital-based.
– Center For Discovery- Residential, not inpatient. I haven’t gone to their Residential, but I know people who have and they are one of the better ones. I’m having a positive experience at their outpatient level right now. They have locations all over the country. I’m unsure if their CA locations take ages 25+, but I did find out from a provider that their Chicago location does *TW* feeding tubes, which can be a very helpful tool for medical stabilization. *TW OVER*
– Melrose Center in St. Louis, Minnesota- I don’t know too much about it, but it’s inpatient level and they take adults over 25.
– Center For Change in Orem, Utah- I haven’t gone here either, but I’ve heard decent things. This is inpatient level, but not hospital-based.
– There’s always Denver ACUTE, but there are a few things to note for this program: If you have Medicaid or Medicare, even if it’s secondary, you’d have to drop it and be free from it for 90 days before you can admit. The other is be aware and read the reviews. It can be a life-saving program, but there are a lot of things to be aware of. This website is the perfect place to read others’ stories from there. Just go to that page knowing it can be triggering from a trauma aspect. A benefit of ACUTE could be that it is the only true medical stabilization program in the country, meaning they bill your medical insurance rather than behavioral. That can also be a negative for some people, since they don’t focus on the psych aspect.
I’ll post a follow-up if I think of any more, and best of luck to you!!
You are such an angel thank you so much I truly appreciate you taking the time to write these out for me
Are there any treatment centers that people would recommend for those who don’t have to weight restore? I’ve had my ED for enough years that with restriction, I truly don’t lose weight and my weight stays stable. Yet I need somewhere to help with behaviors and will do the deeper work. I don’t know if any place like that exists, so I thought I’d ask.
I’m also in my first years of masters in clinical health counseling program and my classes are both synchronous (once a week for 1-2 hours) and asynchronous. A program that would let me continue to do school would be ideal.
Most residential and PHP and IOP programs will accept patients who do not need to weight restore. Even many inpatient programs accept patients who do not need to weight restore. Every time I have been to residential or inpatient, I didn’t need to weight restore. Most ED programs will accept patients who don’t need to weight restore, as the majority of people with ED’s do not need to weight restore, and Atypical Anorexia is more common than “regular” Anorexia in which the patient is underweight.
Most residential programs, as long as your symptoms and ED behaviors are bad enough to meet their admissions criteria, they will still admit you, even if you do not need to weight restore. Someone can correct me if I’m wrong, but I am not aware of any treatment centers at the residential or PHP levels that will refuse to admit someone solely because they don’t need to weight restore?
Usually, it’s at the inpatient level or at medical stabilization programs that are more likely to not admit patients who are already weight restored, but at the residential level, I think most residential treatment centers accept patients who don’t need to weight restore. And even at the inpatient level, plenty of inpatient programs still admit patients who don’t need to weight restore as long as they’re ED behaviors/symptoms are bad enough to meet admissions criteria. Even some medical stabilization programs still admit patients who don’t need to weight restore as long as they’re medically unstable enough to meet their admissions criteria, they’ll still admit them, irregardless of their weight. Even Acute admits patients with Atypical Anorexia and Bulimia who don’t need to weight restore if they’re medically unstable enough for their admissions criteria.
A program that lets you continue to do school while there is going to be harder to find though. But I think pretty much every residential treatment center (and many inpatient programs too) on EDTR accepts patients who don’t need to weight restore as long as your ED behaviors/symptoms are bad enough to meet their admissions criteria. I have been to residential and inpatient many times while not needing to weight restore.
I was scrolling through instagram and a post on the ERC page popped up and it said something about the Baltimore center having an ARFID program. Is that something anyone has heard of before? I went to ERC Chicago and they weren’t great with ARFID so I’m intrigued.
They only have it for kids but TEP is starting a fully arfid program for adults and taking new patients now
Hello! Just writing a comment to say that I came across a newer treatment center in Westport, CT that you could maybe add to the list on here. It’s called LiftWell Health, and it looks like they just have PHP and IOP!
Hi, posting this on the general forum to hopefully reach more people. Does anyone have experience at ERC Dallas or ERC Baltimore in the last few months that would be able to share their experience?
I have experience with ERC baltimore somewhat recently and had a great experience would be glad to answer questions
Would you be willing to write an updated review?
Sanford CTED in Michigan says I can admit to their intensive PHP in a few days and stay in their residential housing. Does anyone have experience with their program and would recommend it / not recommend it?
Thank you so much.
I did their PHP/iop in 2022 and it was great at the time, but I do think a lot has changed since then.
I am between the emily program, monte nido, or selah house for PHP (with housing). Any feedback would be deeply appreciated, and I am on a shorter timeline to figure this out. Thank you.
After over 2 years of no treatment I’m having to reconsider my options. Are there places that allow for asynchronous classes online during down time? I’m in my MSW program and don’t want to take a medical withdrawal. Not looking for inpatient medical.
I know people who did this at Alsana (Santa Barbara) both res and php/iop, but I think it’s case by case and this was about 4 years ago so ymmv, they were generally fairly permissive with this kind of thing. Is there a region of the country you’re needing/wanting to stick to?
Hi Sarah–are in CA? There are a lot of programs in SoCal. I bet someone would let you take some classes. Maybe Reasons? Bright Road? I don’t know about CFD or Alsana, but maybe them too?
Reasons won’t let you do school I asked some Cfd’s will but not a lot of time
Renfrew in FL has staff and time dedicated to helping people stay in school while in treatment. (At least as of 2022.)
Hi! Does anyone have experience navigating seeking care out of state while on state marketplace insurance? To be more specific, I have a qualified health plan through Anthem (not Medicaid) in NY, but the options in state aren’t great, and it’s my understanding anything out of state is considered OON (and since it’s an HMO, OON isn’t covered beyond emergencies). Thank you!
I’ve tried calling larger programs like TEP, ERC etc and also have an HMO and they do not facilitate single case agreements with OON insurance You’re out of luck with out of state treatment unless you have a PPO sadly. I’m entering res in one of my two in state options today as a result of insurance.
you can try to obtain a single case agreement/out of network exception if you have a specific out of state treatment facility in mind. Otherwise you are limited to those facilities in your network.
Does anyone have any recommendations for neurodivergent affirming treatment centers? Particularly ones that may work with PDA? I’m sure that they are hard to come by, but if anyone has any leads, much appreciated!
Hi, what level of care are you looking for?
Probably residential!
Not perfect by any means but I have found Aster Springs (VA res is where I have been) to be the most neurodivergent friendly/affirming out of the treatment centers I have been to.
In particular, one of the dietitians on staff takes a very “no power struggles” approach with her clients which I found extremely helpful with my own PDA. The program in general is VERY supportive of sensory accommodations, willingness to accommodate food preferences (temperature, texture, preferred brands, etc), openness to remaining on certain medications (ie stimulants for ADHD), etc. Fidgets are welcomed and encouraged at the table and in groups. Admissions staff likely will not be the most helpful but request to have a call with on site clinical staff who will definitely be more able to answer questions/provide more details. I would also recommend your outpatient providers have a call with the onsite team prior to your admission to reiterate/provide backup to your needs—in my experience they have very much welcomed this.
Happy to answer further questions if you’d like.
I am looking for recommendations for a helpful PHP with housing that takes BCBS, works with co-occuring trauma (or is at least trauma informed), and offers spravato or ketamine therapy (although not a deal breaker).
Some other info about me is I m neurodivergent ,am in my mid 20’s, and live in the Midwest.
I would go to Skyway Behavioral Health as it is close to me, but unfortunately I attended their program earlier this year and they are not at all equipped to be a full ED program imo.
ERC has also not been helpful for me in the past.
I am currently in residential but would probably be stepping down sometime early next year.
Thanks so much!
I would consider erc baltimore. they offer housing in a hotel normally covered by financial assistance and they offer spravato in house. they also do CPT which is a trauma therapy.
Hi! Is it ok if I ask what residential you are in right now? I’ve been looking for a while for a residential that is good with trauma and offers spravato
Maybe you could check if Within is in network with your insurance? That way you could continue to do spravato from home, and I’ve heard that Within is trauma informed? I think Rogers has PHP in Wisconsin, but I don’t know if they have supportive housing for people not from the area?
So I looked at their page, and it says Roger has PHP and IOP in Skokie, Illinois, as well as PHP and IOP at various cities in WI and Minneapolis
The Emily Program does PHP in MN, Ohio, PA, and Washington. I think they offer supportive housing, but I’m not sure about that?
Does anyone have luck or recommendations of inpatient or php that takes Medicare I’m in California all recommendations are appreciated
Hi,
I am also in California, and decided to travel east to Princeton. They do accept Medicare. I had a great experience there( as great as treatment can be :).
I recommend checking out the review page!
I called today they arnt accepting people in the wait list
Nat,
i would encourage you to keep calling. The waitlist reopening can happen quickly.
How frustrating I’m so sorry ..they called me with a bed today but I’ve decided to bf elsewhere. It’s so random when it opens up. But moves fast once you are on it . I wish you the best of luck
I’m not 100% sure but I THINK what’s going on is that they stop accepting people when it reaches a certain point in hopes that people who have other options go elsewhere in order to keep the wait manageable for those who don’t or who want Princeton specifically. Other programs that take govt insurance can get waitlists into the 3-4 month range. So it doesn’t necessarily mean the waitlist is months long or anything, although there have been community members here who did have to wait months so it does vary. So keep calling often to catch them when they’re open
The Emily Program Raleigh-Durham (I think this is the artist formerly known as Veritas(?) but correct me if I’m wrong!) Just launched the first ARFID specific center! Really exciting news for so many! Hopefully it’s as specialized as it sounds.
https://www.businesswire.com/news/home/20251202474797/en/The-Emily-Program-Opens-Nations-First-ARFID-Center-of-Excellence-in-RaleighDurham
Hi All – my 70 year old mother suffers from anorexia nervosa (amongst other medical conditions) and has had a steadily declining BMI for 10+ years. The latest official reading was in mid-October of XX, although since then she definitely has had some sort of determined mental shift and has gained X kg as of a few days ago. Local psychiatrists/therapists/dietitians will not accept her until she goes to a residential treatment program. The problem is almost all of the centers are very strict, understandably so for most patients, but for her at the age of 70 there needs to be flexibility i.e. be able to use the bathroom freely, eat a small snack at 5am when she wakes up, lay down during the day if/when she feels dizzy, etc.
I am thinking the better approach might be to find a high-end addiction recovery center that also has expertise in eating disorders (nutritionists and therapists). Does anyone have any recommendations? Does anyone know women 60+ years old that have gone to any centers? Thank you!!
**numbers redacted by admin per site policy
Has anyone been to the Virtue Recovery Center in Las Vegas? They have an ED program that might be a great fit for my mother.
Hi Yoav, I commend your mom for being open to treatment! I don’t think an addiction recovery center would be equipped to deal with the complexity of refeeding.
-I would recommend Laurette even though they are strict they are individualized and in my opinion the best (I have been to many places).
-Aster Springs in VA also has room for flexibility with food and resting being an 8 bed program. When I was there I was with older clients (its luck of the draw) but they had a good experience.
If she is looking for more of a stabilization program before outpatient Princeton could be an option but they are strict.
Haven of Hope in TN also has a very individualized approach.
There is no perfect treatment center but hopefully it gives her what she needs to move forward.
I’m not sure an addiction facility would be a good fit, as they usually aren’t equipped to manage ED’s. And idk if this is the case or not, but if your mother struggles with chronic pain and is on any pain meds, an addiction facility would most likely take her off of them. I think an inpatient ED unit located in a larger medical hospital would probably be the best fit for someone her age. They will be more equipped to deal with serious medical issues, and more likely to have real hospital beds that are actually comfortable to sleep in for people with back pain. The only ED program I have been to that I think would be equipped to deal with lots of serious medical problems is Robert Wood Johnson in NJ. But in general, most residentials are not equipped to deal with the types of medical problems elderly people have. I have been denied admissions from every residential facility I’ve contacted due to serious non-ED related medical problems I struggle with, and I’m only in my 30’s. I think an inpatient ED unit that’s located in a larger medical hospital would be your best bet. Sanford is also supposed to be good with serious medical issues. She wouldn’t have to do their SEED program if she didn’t want to. They have a regular ED track for adults too, that’s not SEED.
This is launching residential for adolescents in new York in 2026 https://www.thehealingconnectioninc.org/residential-program
Hello again,
I’m still searching for a medical stabilization program for adults. Some earlier comments here mentioned that UCSF will treat adults at their Parnassus location. Does anyone have experience with this program? Any information you could provide would be immensely helpful. Thanks once again.
I know an adult who did medical stabilization in Cedars Sinai. I’m pretty sure they have some sort of ED protocol.
I recently moved to the western suburbs of Chicago, does anyone know if Northwestern’s ED protocol is strictly medical stabilization or a psych admission??
In the process of choosing a primary care, etc. and wanted to know if I should go with northwestern medicine if that’s the case for a direct admission.
* (I have a Medicare advantage plan and can’t get treatment until the new year no matter how much I continue to go downhill) even though I SO badly want off this rollercoaster. ☹️
I’ve been to Northwestern once years ago, and the psych unit there was actually pretty decent compared to other psych units, but they didn’t treat eating disorders there – they would transfer you to Ascension Alexian Brothers or Endeavor Health Linden Oaks for inpatient ED treatment.
I would recommend finding a primary care doctor in the Ascension network. I have Medicare Advantage and had a very good experience with their providers, although this was years ago when they were called Presence/Amita. Also, two of the three inpatient ED units that treat adults are Ascension ones – Ascension Alexian Brothers (northwest suburbs of Chicago) and Ascension St. Joseph’s (north side of Chicago). On the Alexian Brothers review page here, you can also see a review of their medical stabilization protocol at the medical hospital.
Thanks again for your prompt response. I’m actually the one who inquired about admitting to Ascension St. Joseph’s on your own back in mid October and you went above and beyond!!
I actually did notice that Presence still comes up when I ran Ascension through my potential plan. I’ve searched all the other ED options in and around the area and only Ascension and Northwestern are covered from what I can gather for now. Thanks for the tip, I’ll go back to the drawing board!
I’m being required to seek *possible TW* refeeding *end TW* in a hospital setting before admitting to residential? I can go somewhere in Massachusetts or Rhode Island – has anyone had an okay experience in either of those hospitals?I’ve just had bad experiences in the past and it’s scary and dehumanizing usually.
Beth Israel in Boston was helpful for me. I posted a review from this summer on their page. You admit through the ED and your doctor can call ahead to request admission.
I’ve been to Beth Israel twice, with mixed experiences, but I generally think it’s a good option. I’d be happy to share more about my experience if you’re interested.
Can I maybe ask how you found a doctor that specializes in EDs in Boston or even cares? I’m not UW and I’ve had an ED for about 20 years my PCP but doesn’t see things like low potassium as something that even needs to be treated or mentioned. I just want a doctor that is informed.
bump, this info would be helpful for me as well. I’m in western MA and have to see therapist and dietitian from Boston bc there’s nothing out here.
I can recommend a therapist in western Mass, Longmeadow to be specific. I saw her when she was affiliated with Baystate Medical Center in Springfield but she’s now in private practice and accepting adults with ED’s. I speak highly of her!
https://www.psychologytoday.com/us/therapists/cheryl-bonica-longmeadow-ma/898553
I also saw this dietician a few times through Baystate Medical Center but I don’t know if she’s still practicing as I haven’t seen her since late 2006/early 2007.
https://www.umass.edu/public-health-sciences/about/directory/claire-norton
Rhode Island has NOTHING in terms of treatment for ED’s if you’re in need of medical stabilization and you’re an adult. They only have two ED specific PHP/IOP programs and that’s IF you have the right insurance to cover the costs. Instead they’ll admit you to Rhode Island Hospital and place you on the psych floor regardless of what you tell them. Before moving out of this state, I was told repeatedly that this was my ONLY option as only teens have ED’s!!!! I avoided this like the plague.
I’ve lived in Massachusetts at different times and you’re so much better off getting treatment there. So many more options. Good luck!!!
I would like to share my current story.
I’ve called (literally) every single inpatient option in the entire country. I am over 26 years old, and I live in CA. I have several health complications, chronic illnesses, and I am considered SEED. My medical situation is bad, and getting worse. But mentally and emotionally, I am in a good place- I just desperately WANT to get better and re-feed, despite GI issues stopping me. I’m no stranger to treatment. But I am FINALLY motivated. I WANT to recover, finally. After all this time.
I’ve gotten every excuse.
“We don’t have an ED unit anymore.” “we don’t offer that treatment anymore.” “you’re too sick for this treatment center/hospital.” “we only treat children. you’re too old for this unit.” “this hospital [across the country] is only available for locals.” “oh, you need IVs? we don’t do that here.” “you have mobility/ADL issues? we can’t help you with that here.” “we can’t take you with that insurance plan.” (medicaid at ACUTE.) “you’re not clear to travel here.” “I know you sent your records, but can you call your doctor and have them send them again? we lost them” “We have a 2 month waitlist” “Your allergies are NOT REAL AND WE WILL MAKE YOU EAT THEM.” (yes, this really happened. I am allergic to raw/ fresh veggies and fruits, not claiming to be allergic to everything. Rosewood/Monte Nido said this one.)
After awhile, I kept hearing this:
“We suggest you go to the emergency room”
So I did. I packed a bag, went to the ER, and spent 12 hours there. An entire day. They barely ran tests, didn’t check my weight, and hardly even asked questions.
I advocated heavily to be admitted. I said I’d do anything to get better.
They sent me away at 11:30pm. I was exhibiting severe starvation symptoms, but they claimed I was “perfectly healthy,” despite the fact that most IP programs turned me away for being too ill. They neglected to look at the blood work I had gotten done just a few days prior and focused only on the little that they had ran. I left crying, feeling defeated.
My story isn’t atypical, and it SHOULD be. As adults, we need and deserve care too. EDs do not only affect those in adolescence and early adulthood. Something needs to change.
I share this for awareness.
Please, if you’re young and reading this, know that accessing care before age 26 is much easier. Do what you can now. You ARE worth it.
And if you’re in my shoes, please, know it is not our faults. The system has failed us. It’s getting worse, but it’s not our fault and we still deserve to get help.
I will keep fighting, in spite of all these places, and because I know I deserve it. I will make it through this. And so will all of you.
Hi Mandy, I just wanted to say I am so sorry you’re going through this. You deserve to be able to access real care that meets your needs. My heart hurts for you; I have experienced something very similar, and it traumatized me deeply.
I hope you keep fighting to LIVE. I hear the fire in your words, and I admire it so much.
Thank you so much for your kind words. I’m so sorry that you understand this pain all too well.
I absolutely am still fighting and will continue to. I believe there’s always hope, even in the dark
I’m so sorry this is happening to you. Have you tried Rady children’s or Beth Israel?
Yeah, Rady doesn’t accept people over 25, and I was told by Beth Israel that they only accept people in-state
Mandy, I don’t have any advice or suggestions, but I just wanted to say I’m so so sorry you’re going through this and that the system has failed you so. I am in a similar position. I no longer need treatment for my ED, as I am mostly recovered, I have been trying to find a primary MH/primary trauma program for over a year now, and everywhere I’ve contacted has told me no due to my chronic illnesses/ being wheelchair bound/needing assistance with ADL’s/medical complexity/history of Ed (even though it isn’t currently active), so I can definitely relate to your situation. I’m so so sorry the system has failed us so (and so many others) so so much. I feel so hopeless and full of despair, I am so glad you have been able to maintain hope!!! I strive so hard to be hopeful, but it’s just so so hard sometimes and I feel so overwhelmed by despair and hopelessness. You give me inspiration to keep pushing through and keep trying and keep calling programs despite all the no’s I’ve gotten! I hope we both get a yes soon!!!
I’m so sorry you’ve been navigating this traumatic process for over a year. It’s ridiculous that people like us are unable to access care due to things like medical complexity. We deserve care! I know it’s so hard to maintain hope, but I promise you you are worthy of care and, eventually, all the fight will be worth it. Sending you love!!
Thanks!!! I really appreciate it!!! That means a lot to me!! I’m trying to keep pushing through
I am so sorry to hear you are going through this. If you don’t mind me asking, did you visit a large academic medical center or a local hospital? If you need care urgently, I’d strongly recommend going to the nearest university hospital, preferably one with a child/adolescent/young adult ED stabilization program. Some adapt their protocols for adults, though it’s unofficial. I hope this is somewhat helpful. Wishing you all the best.
Unfortunately yeah, I did go to a large university hospital. Due to their ED unit’s strict age cap of 25 years old, I was (rudely and dismissively) turned away by the doctors. They refused to treat me on any other floor of the hospital, and they didn’t even give me fluids in my 12 hours at the ER. They didn’t hook me up to monitors, check my weight, nothing.
It’s heartbreaking to hear this. The system is so deeply flawed. The only other idea I have is, if you have a primary care doctor, maybe they could advocate for you?
As a 27 year old I’ve gone to ucla Santa Monica and they do the Ed protocol everything they do in their Ed program for under 25. Even at 27 they allowed me in their peds floor and actually see the Ed drs. I’ve gone multiple times above 25 and they will do the same treatment on a general floor
That’s actually the hospital I was referring to. UCLA completely turned me away. My entire large team of doctors at UCLA advocating for me didn’t even convince them
I know this isn’t ideal as they wouldn’t be able to provide the medical treatment you need, but are you able to attend a virtual PHP program while continuing to get medical treatment from your outpatient drs?
Hi Nat, thank you so much for this information! A few questions, if you don’t mind me asking:
1) Were you an established patient at UCLA before turning 25? Would they admit me as a new patient at age 30 with no connection to their program or doctors?
2) Are there stricter admission/discharge criteria for adults vs children?
3) What was your experience like? I understand treatment is never easy, but do you feel like they took good care of you and treated you with respect?
I was established for a year but I aged out the er dr I talked to didn’t know I was an established patient they told me because of my bmi they would do the Ed protocol. The second time I talked to the social worker if they have room they can make an acception to put you on peds and do the real Ed program I can give you their email as long as your 100% meal compliant they will let you to the Ed unit once you don’t finish or supplement they will discharge you. If your 25 or younger they arnt as strict but as an adult they will make exceptions if there’s room and your committed but if you go through their er and as for Ed protocol they will just put you on the gen floor I’ve done this 6 times the past year as a 26-27 year old.
UCLA is the only place that they treated me with respect the nurses are so kind and don’t treat you horribly like other hospitals I’ve been to
Have you looked into Cedars Sinai? My friend did medical stabilization there as an adult. I can find out who the admitting doctor was if you’d like.
if you could find that out, that would be helpful! thanks!
Hi Mandy,
Looks like we’re in the same boat. I just want to say I feel your pain, and I wish I could help somehow.
I did a ton of research this afternoon, and found a conference abstract that says the Hospital of the University of Pennsylvania (HUP) is implementing the CHOP inpatient ED pathway in their adult hospital:
https://www.atsjournals.org/doi/abs/10.1164/ajrccm-conference.2024.209.1_MeetingAbstracts.A1527
I have no other information about this program; seems like it’s still being developed and they’re not advertising it yet, but it is REAL, and worth looking into. (Not sure how far you are from Pennsylvania though– personally it’s not an option for me but I thought I’d put it out there anyway)
I know CHOP’s program is well-regarded and there are some reviews here on it. Unfortunately, their age limit is 21, but the new adult program at HUP will accept older adults.
Hey H,
Thank you so much for finding this! I’m from the East Coast, but I live on the West Coast, so PA is certainly an option for me since I have friends and family there. I’ll call them on Monday!
While it’s nice to know I’m not alone right now in this search, I do wish you weren’t also struggling with this. Sending you love and hope!!
wow, this is great info! i wish there was more to read than the abstract but valuable to know nonetheless
I’m looking for a medical-only stabilization program for adults (over age 30). I’m not extremely unstable; therefore I would not qualify for programs such as ACUTE. However, I am struggling with my eating behaviors and weight. I am looking for a short-term program whose sole focus is stabilization rather than therapy. I have been through other forms of treatment (inpatient, residential, PHP, IOP) and I simply cannot endure any more group therapy. Moreover, I would prefer a room-based program as I struggle with body comparisons. Any recommendations would be greatly appreciated. Thank you.
This is hard. I’m with you on this. It almost doesn’t exist sadly. I’d be interested in the information too
Hi H,
I am 30 years old and looking for urgent inpatient care. I have been recommended Denver ACUTE, but cannot admit due to having Medicaid as a secondary insurance plan. Because of this, I have contacted every option in the country.
Here are my findings, according to extensive research via EDTR, providers, and program websites.
I know this isn’t a perfect list based on what you asked, but options are so limited for us.
I hope this helps at least a bit. Wishing you the best luck.
admissions coordinator for Sanford is out this week and back on monday so that is cause for the delay! im trying to get in myself!
thank you sm for that info!! I’ll absolutely call them back monday
I can help with Sanford: it’s not room-based by default, but can be based on level of medical acuity. You can also advocate for a limited group schedule based on needs.
That’s great info, thank you so much! <3
an update to this thread- Sanford currently has a 12-14 week wait list
Were you able to get on the waitlist? I do recommend this program if one can get in.
Unfortunately no, I had to cross Sanford off my list due to the wait. I had a promising call with Princeton about their ETA for me though, so I’m just keeping my suitcase packed, my phone on loud, and my fingers crossed. Thank you for checking in!
I’m currently trying to get into Princeton as well but from what you’ve mentioned about your medical situation you will likely be triaged way way sooner than me as for me it’s the mental side that’s bad right now so I may not get in for ages (currently dealing with lab delays due to holiday but hoping I can get waitlisted before it closes again) but I’ll look for you, my first name is with an M as well. If I can’t get in I have very limited other options due to insurance so crossing fingers for both of us
oh Nonnie 🙁 i’m sorry you are struggling at the moment. your insight has been so helpful on EDTR. i actually asked you questions nearly 2 years ago and find myself in a low place as well… here for you!
Crossing my fingers for you, Nonnie Mouse! I hope the lab isn’t delaying you anymore. Have you gotten on the waitlist? They told me it’ll be another 3ish weeks as of Monday. I’m just trying to hold on till then.
Also wanna remind you that you deserve help just as much as someone who may be triaged sooner!! Hang on in the meantime <3 You got this!
I got on the waitlist Monday and was told minimum 3 weeks but when I asked for an upper estimate she didn’t really have one. And I know that acuity is one factor they use but it isn’t the only one. I do kinda have an idea what factors they use to triage apart from acuity from being there so many times and talking to dozens of people but I’m not gonna say in case I’m totally wrong. I know I deserve help but it kinda messes with my head that if my insurance covered it I could do residential but they don’t and that’s not my decision
i got a call with a bed there today and they gave me two hours to accept it and I was unfortunately in class so didn’t get the voicemail until it was too late . The list definately moves very fast though
It does. Best of luck.
Were you able to find a program, H? Wishing you the best <3
Any recent info on east coast (driving distance of Virginia) programs that take Medicare? Particularly interested in if anyone knows of programs that historically got middling or bad reviews that may have improved, and places that previously did not allow electronics that changed their policy
Walden in MA takes Medicare at their inpatient
Has it significantly improved in the past few years? There are past reviews detailing coercive practices (*TW* certing, restraint, drop and pull *end TW*) that make it a hard no for me if not
*TW: tubes, involuntary treatment* They do not do drop and pulls on adults unless you choose it. Same for tubes unless you have Court order for Ng feeds. If you’re not complying with the nutrition at all then they will ask you to discharge. You have to accept some form of nutrition in order to stay there pretty much. You cannot be forced unless you’ve been bought to court.*end TW*
Thanks for the info! Do they often have involuntary patients? Do they only do it if not accepting nutrition at all and medically unstable or can it happen for other reasons? I don’t fear it’d happen to me so much, because I would not be going if I didn’t intend to accept nutrition, but I have trauma from past involuntary care and fear that being exposed to it would be triggering for my trauma and having a lot of patients who aren’t recovery-motivated in the milieu would trigger my ED
*TW: involuntary treatment, tubes*
They had one patient that i knew of who was involuntarily/committed at the time, coming up on one year. Then there was one person who was court ordered initially but it was lifted with progress and time. They really do it on a case by case basis like past SI, past acuity and current, extreme SH behaviors. That was only 2 people on a unit of 27. It’s a mixed bag on the recovery vibe of the milieu. Sometimes it can be great, like only children with Ngs and a handful of adults and then within a week it can change to 10 out of 16 adults on tubes. So it depends on the people. I will say that both times i had a tube and was using behaviors/being non compliant/losing weight and they let me leave AMA both times.
I think Reflections at Dominion hospital might take Medicare, but I’m not sure? They do not allow electronics though. They tend to get bad reviews, but I have had mostly good experiences there
Apparently they don’t take it anymore? It’s the closest center to me but my therapist feels it would be a bad fit for me based on her other clients’ experiences there. Electronics are not a dealbreaker if it’s a closer center but I don’t feel safe being 600 miles from home without a way to contact anyone besides a landline
That is completely understandable and makes perfect sense! Have you looked into Robert Wood Johnson in NJ? They don’t allow your own personal electronics, but the census is so small, usually under 10, that the landline they have that you can make calls from is almost always free since the census is so small. It’s not like a lot of places where you can almost never get on the hospital phone because there’s always a long line. When I was there, I don’t think there was ever more than 7 or 8 patients, so the phone is usually free. I’m not sure if they take Medicare or not though? But you could call and ask!
I have been in contact with Princeton’s EDU in New Jersey. They told me they accept Medicaid, I’m not sure about Medicare. Worth a call if you have the ability to ask them. Wishing you luck on your search
They do. I have been there before, and it’s my first choice, but apparently the waitlist has been long in recent years so I’m trying to explore other possibilities in case I can’t go there
Definitely a good idea to keep your options open. I know South Carolina isn’t necessarily driving distance from Virginia, but I’m also in contact with The Emily Program, and I’ve been told (as recently as yesterday, Fri 11/21) that they have immediate availability. Hoping we both get in somewhere good soon!! This process is so exhausting but we deserve help.
Did you ever find somewhere to go? I don’t know if they accept Medicare, but other inpatient programs within driving distance from VA are John Hopkins (though I’ve heard mostly not great things about their program, but it might be worth looking into if you have no other treatment options) and UNC Center for Excellence
I’m on the waitlist for Princeton and from what they’ve told me it’ll likely be in the next few weeks, so trying to stick it out.
Any recommendations for a residential (or inpatient) program that supports HAES? I’m at a normal weight, but I was diagnosed with an. I prefer the East Coast, but I can travel. MN (and Walden) won’t take me, and I have had bad experiences with CFD. Complex medical history as well.
(I’ve posted here a few times; insurance is finally changing to United, so it opens up my options)
Aster springs, haven of hope, Laurette! Laurette is best medically.
I would love to go to Laurette, especially as I’m an Orthodox Jew (forgot to mention I need kosher as an option) but it seems they don’t take my insurance. Do they do SCAs? Maybe I’ll look into that
Aster springs and haven of hope don’t seem to have kosher.
It’s worth calling to ask! I am not sure about SCA’s.
I know ERC Baltimore does Kosher. I like the PCP there but overall it def has issues as a treatment center. Diverse client population though.
Thanks! I’ll look into ERC Baltimore
Robert wood Johnson is HAES
is RWJ better than Princeton? Was recommended Princeton a few months back when I was in res (basically discharged with recommendation for HLOC but nowhere would take me for various reasons lol) but Princeton wouldn’t take me *TW* because of my weight *END TW* I’ll look into RWJ, I believe they take my new insurance. Counting down the days until January
I’m not sure if Princeton is better than RWJ or not. I have never been to Princeton, and have only been to RWJ, so I have no idea how Princeton is comparatively. I went to RWJ because Princeton denied me on the basis of my CPTSD being too severe and them not being equipped to treat patients who struggle with chronic dissociation and I also struggle with SH/SI, which at least , at the time (I dont know if things have changed), but at the time, Princeton refused to accept anyone who struggled with SH/SI.
When I was at RWJ, most of the people there were there because Princeton had denied them admission on the basis of their co occurring mental illnesses being too severe or weight or struggling with SH/SI, so I know RWJ does accept a lot of people who have been denied from Princeton, but I don’t know how the actual programs compare as I have never been to Princeton.
From what I have heard, RWJ has a more diverse patient body size compared to Princeton. I’ve heard that Princeton tends to have mostly thin bodied patients, while at least when I was at RWJ, there were a fair amount of people in larger bodies and more diverse ED diagnoses (there were people with BED and Bulimia and people in larger bodies with Atypical AN), while I’ve heard Princeton is almost exclusively geared towards people with restrictive EDs who need to weight restore, though again, I have never been to Princeton personally, so I can’t verify that’s true, but that’s what I have heard. A while ago, someone on EDTR told me they thought someone in a larger body with bulimia would feel out of place at Princeton and that it’s mostly geared towards people with restrictive Ed’s who need to weight restore there. While, at least when I was at RWJ, there were diverse ED diagnoses, and diverse body sizes with some patients in larger bodies. And at least when I was there, RWJ had an ARFID track.
Also, Reflections at Dominion hospital is also HAES, and at least when I was there, their dieticians were very HAES and would discuss HAES principles during groups and in individual sessions with them. And they had a fair amount of process groups as well
I don’t know if either RWJ or Reflections allow kosher though, but you could call and ask!
Rachael, am I allowed to share with Anon the name and number of the admissions woman at Reflections who would be the person who could answer questions about if kosher is allowed?
In this situation, sure. Anon once Elizabeth has posted please confirm as soon as you can that you have seen it and I will redact the contact info.
Does anyone have recommendations for adult (24/25) virtual IOP programs that would be either before 12pm or after 5pm PST (besides Within)? I’m trying to find something that will work with my school schedule for the upcoming semester, but most virtual IOP programs I’ve reached out to seem to expect either a later morning program or an earlier evening program :/
Might be worth checking into Monte nido, I know they had two separate time tracks for the east coast, so they may do the same for the west coast!
TEP [The Emily Program] has 5-8 IOP (virtual) at least in WA
Does anyone at all (please) have any recommendations or any advice on how I can better find a primary care provider/medical doctor in Connecticut who is educated on/has experience working with patients who have eating disorders? Preferably someone who takes insurance but honestly I’m desperate. Any any any advice at all would be greatly appreciated- thank you!
*admin note: please feel free to use names in your responses! i can redact them later
How old are you? Admin can also pass along my email to you if you would like to connect offline, I can recommend a couple depending on your age!
Hi! I am 26. Yes, if you have anyone who takes adults that would be great!