Client General Forum

Get answers about eating disorder treatment from people who have been there! On this page you can answer others' questions, ask your questions, and discuss recommendations.

Welcome to the Questions & Answers forum of Eating Disorder Treatment Reviews! If you have a broad question or something that doesn’t fit just one center’s page, please post it here! For general discussion about treatment or requests for recommendations, post here too.

To browse treatment centers, you can look through the Inpatient/Residential Client Reviews homepage and the IOP & PHP Treatment Reviews homepage. You can also browse categories in the dropdown menus on the right.

However, to view or add ACTUAL center reviews and specific questions, please post on the center’s page. You can use the search bar or links located on the top of this page. For questions or comments about specific centers, go to the specific page and share there. Thank you!

If you have been to a treatment center, please help others out and share a review on the center’s page

As you know, going to treatment is scary. Your review will help more people than you could ever imagine.

Did you have a great experience? Please share it!
Did you have a good-but-not-great experience? Please share it
Did you have an okay experience? Please share it!
Did you have a bad experience? Please share it!
Can you post what meals, groups, the schedule, or the rules were like? You’re awesome, just share that part!

*Just another reminder to please refrain from using names due to legal and other privacy purposes. Much appreciated.

*I can empathize with getting out of treatment, being really frustrated with everything and not having a magic cure. I ask that you please take a step back and breathe and try to write, ask, etc., from your wise mind.

 

You are all courageous, both those seeking treatment and those providing reviews. Thank you!

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6.1K Replies (Leave a reply - you are worth it!)
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Rachel, EDTR
Admin
11 months ago

Hi all! The forum is getting pretty dominated by posts that require Trigger Warnings (TW). As a solution, I have created a Client General Forum sub-page for posts most likely to be triggering to the majority of people (posts that mention *TW*low bmi*END TW* and/or *TW*tubes of any kind*END TW*). This will hopefully make this forum easier to navigate!

Click here for subpage –> TRIGGER WARNING SUBPAGE OF GENERAL FORUM.

Anonymous
6 days ago

Is there an IOP or virtual IOP in California that offers psychiatry?

Anonymous
6 days ago

Is there any ED program / treatment center out there that is really and truly “trauma informed?”

Anonymous
Reply to  Anonymous
3 days ago

renfrew residential

Anonymous
6 days ago

Wondering if there are any recent experiences from Opal Food + Body Wisdom in Seattle, WA?

A
Reply to  Anonymous
5 days ago

I was there 8 years ago, so definitely not “recent.” However, I have been in more than 15 treatment facilities, and Opal is one of the best. The clinicians were so kind, I like the HAES philosophy, the food is balanced, and it was just a good vibe. Unless things have changed a lot (and I doubt it, because the owners and leadership are the same) then I recommend it.

LVA
7 days ago

I need some help/advice/feedback. I am a kinda-older woman and I have done every “amazing” program out there and every level of care. I feel so lost because I cannot seem to do recovery when I get home. I relapse after 4-6 weeks every time. I cannot afford the live-in programs and virtual programs are a joke for me. I am tired of treatment…any thoughts??

emilia
Reply to  LVA
4 days ago

Is there anything in your area that provides coaching? So that when you are at home you can call someone at anytime to work you through things? I recently saw something like that and that helps with the being at home transition. I was always a rockstar in treatment but once I left I literally could never do it on my own.

LVa
Reply to  emilia
3 days ago

I will look into that. Thank you!!

Anonny
8 days ago

Does anyone have any more details or information about the UW-Madison medical stabilization program/protocol?

K
Reply to  Anonny
7 days ago

I’m not sure that there’s a UW Health hospital that has specific stabilization programs or protocols for adults, though I’m fairly new to the area. I believe there is a protocol in the children’s hospital, but generally it seems like UW students are given referrals to e.g. Rogers if stabilization is indicated.

RC
Reply to  Anonny
7 days ago

I was at the UW hospital for stabilization in the fall of 2023 and did the ED protocol. What kind of questions do you have? I can try to answer, though my info is 2.5 years old.

Anonny
Reply to  RC
6 days ago

Do you know if there is an age cap? What is the process to get admitted? Did you have a good experience/would you be able to do a full review? Thanks so much!

Anonny
Reply to  RC
6 days ago

Or even if you’re not able to do a full review, I’d love to know what the food situation is like (do you have any say in what you get for meals and snacks, how is the food, supplement protocol, etc), and if you have a sitter with you at all times or just during meals? Also, after stabilization were you allowed to discharge back outpatient or did you have to go to a HLOC? Thanks again!

RC
Reply to  Anonny
5 days ago

Since I’ve only been there once and I only know one other person who did medical stabilization at the UW-Health Hospital in Madison (not when I was there), this is really just my perspective. I wouldn’t consider this a comprehensive review of the ED protocol there.

When were you there, what level of care, LOS, etc.? Was there in fall 2023 on a med/surg floor (inpatient) for medical stabilization. I was there around a week. The other person I know who was there stayed about two weeks. It’s completely room-based care (I didn’t leave my room the entire week), so no idea how many people in the hospital are getting stabilized for an ED at any given point. Zero interaction with other patients.

Frequency of seeing providers: I met with my attending doctor daily (a general internist). I met with the RD in the morning on my first full day (admitted around 6pm the day before), one other time, and had one phone call with her. I declined meeting with psychiatry (meds were stable). I met with Case Management on my first full day for d/c planning and had maybe two other conversations with her during my stay. No psychologist/social worker for therapeutic support (maybe if you asked someone would meet with you? I’m not sure). No groups or structured activities or anything like that. You had an RN assigned to you daily and a CNA/sitter type person too (more on that later).

Admissions process: I really don’t have a lot of info here (and I don’t think the UW Health website says much, unless they updated it in the last two years). My OP team had connections with one of the adolescent medicine providers who specializes in EDs and has admitting privileges. Somehow they orchestrated my admission, though it took a few days. My psychiatrist contacted this doctor, gave her relevant clinical info, she did some behind-the-scenes work for me, and then someone from general admissions called me when there was a bed. I had to show up, check in at registration, and then someone took me to my room on the med/surg floor. No E.R. stuff first. I would think that you can admit through the emergency room, but I don’t know the criteria they use for admitting.

By the way, I was in my early 40s when I was there. I imagine most people getting stabilized have some link to adolescent medicine (so ages 12-25/26), but I don’t think there was any pushback about my age.

Typical day: It’s pretty unremarkable. In the wee hours of the morning, they’d wheel a scale in and also get vitals and labs. A couple times a day they’d do vitals, and I felt like they were drawing labs all the time (including in the middle of the night). They do place an IV upon admission in case it’s necessary and leave it in throughout your stay. Otherwise, the doctor would meet with you each day and the above-mentioned providers at random points. Nurses would stop in for meds, check ins, etc. Three meals and three snacks at specific times (no recollection of those details). Besides eating, vitals, labs, and interactions with the care team, the time was yours–though you had to basically stay in your bed. No restrictions on electronics, cords, etc. I pretty much just read, napped, talked on the phone, did some work on my laptop, and watched TV. I wasn’t really bored, mostly because I felt crappy and run down and just wanted to rest, but I was also only there a week or so.

Food/supplements: The RD picked everything for me. She did ask about explicit dislikes (as well as preferences), and my OP dietitian talked to her too upon admission. For some reason, my snacks were virtually the same thing, three times a day, every single day I was there (a small muffin or slice of banana bread. I think once I got yogurt as a snack). The meals were not excessive in portion sizes or volume. I remember having a breakfast sandwich and fruit; an English muffin, dairy, and fruit; a chicken sandwich and a side salad; a stir fry. Sorry, I don’t really remember many food details. Overall, the quality was fine. Decent hospital food. And manageable volume for where I was at. I don’t have any allergies or intolerances or preferences like vegetarian/vegan, so I can’t speak to that.

I also don’t remember the fluid protocol. I don’t struggle with fluids, but I was fine with the water they allowed me. It was adequate. I didn’t really bother to find out about things like herbal tea or soda. I don’t think it was ever offered. I do know that my doctor had to give permission for me to have caffeinated coffee, and after the first day, I got it daily at breakfast.

There were time limits on the meals/snacks (typical …probably 30 mins for meals, 15 for snacks), but pacing isn’t an issue for me. The policy was that if you couldn’t complete everything plated for you, the nurse would review your tray and you’d get the appropriate amount of supplement (Ensure+ at the time) to replace what you hadn’t completed. If you couldn’t/wouldn’t drink the supplement, they’d place an NG-tube. I did ask the RD if it would be drop/pull, and she said after the initial placement, they’d leave it in for a minimum amount of time (2 or 3 days?) before considering removing it. I completed everything with food/supplements.

Supervision, movement. etc.: I wasn’t allowed to leave my bed without assistance from the CNA. They were with me during meals and snacks as well as for a designated time after each meal/snack. If I wanted to sit in the chair or use the bathroom, I had to call for assistance. Bathroom usage was supervised for the duration of my stay (door cracked), and all output was monitored too. For showering, I had to ask as well (they didn’t seem to care what time I showered, though), and that was supervised too. I had to sit the whole time while showering. There’s also a camera monitoring system always on, so you couldn’t really just get up and move around when nobody was present (I think you could refuse the camera, but then you’d have a sitter 24-7). A few times I’d forget to raise the bed electronically when I wanted to sit up–and just sat up on my own–and someone would call me out through the monitor. I got along fine with the CNAs, and they were totally willing to take me around the hospital in a wheelchair. At one point, I thought I wanted to go outside (in a wheelchair), which they were game to do, but then I decided it was too cold out and changed my mind.

After-care: I had been on the waitlist for IED at Rogers for one or two weeks when I needed to get stabilized at the UW hospital, and at the time the Rogers waitlist was really long. The UW case manager was able to expedite my admission to Rogers. Even though I was on the waitlist when I admitted to the UW, I wasn’t really committed yet to going to Rogers. They kinda talked me into it at the UW hospital, though, and I did end up going. However, after discharging from the UW hospital, I had a few days before I admitted to Rogers and I went home. They didn’t make me do a direct transfer or anything.

Overall experience: It was fine and what I needed. It got me stable, and it did help get me into Rogers much more quickly. I’m not typically someone who struggles with rules and restrictions, though, so I was able to tolerate all that as well as can be expected. The nurses were great, too. No complaints really about any of the staff. If I needed med stabilization again, I’d go back …especially if the admissions process could be streamlined for me again! I also live in WI, so it’s just an easy convenient option for me.

Hope this helps some! Best of luck!

Anonny
Reply to  RC
5 days ago

Thank you this was super helpful – I really appreciate it!

Ganon
Reply to  Anonny
5 days ago

At one point they had the whole protocol public through just a google search but they have since made it private. From what I remember from reading it was pretty standard hospital protocol for eating disorders that don’t specialize in eating disorders

Bj
9 days ago

I apologize if there is already a thread or page for this but had trouble finding it ! Looking for reviews or experiences with ERC virtual IOP program!

Fearlessfireflies
10 days ago

** I’ve cross posted! **

I’m looking to see if anyone else has experienced this with Ascension St. Joseph EDU in Chicago, IL?

Has anyone else run into an issue like this? My PCP has been trying to coordinate with them but hasn’t gotten any feedback or a response with the three attempts that she’s made. I’m now wondering (honestly worried) if I need to be admitted to my local hospital (she’s aware of this) to help facilitate being transferred there later on.

Kat
12 days ago

Looking for a comprehensive program that addresses both Trauma/PTSD and eating disorders. Hoping for recommendations.

K
Reply to  Kat
8 days ago

Often ED is treated first, then PTSD in a separate program.

There’s only 1 program that I’m aware of that treats both simultaneously, it is a PHP/IOP in Monterey, CA called Harmony Place or Harmony Grove. I’ve never been, but did go to the center the owners ran before, which was a trauma & eating disorder residential/transitional living/PHP/IOP in St. Louis.

There’s River Oaks Inpatient trauma program in Louisiana, but the ED program there is separate, so you’d have to admit for ED treatment then seek a transfer to the trauma unit.

Rogers in WI has an EDU, ED res and PTSD res. They are known for being able to move people between different programs as needed.

H
18 days ago

Hi I have a question regarding residentials in NY that I hope someone could help me out with!! I am looking for a Res. as there isn’t many in NJ and got referred to Monte Nido. Is this a good choice? I would be in their adult program, also this would be first ED based program I would be admitted to. Is there a better option that I should look into rather than Monte Nido? If not which facility would you recommend?

Katie
Reply to  H
17 days ago

I went to Monte nido rockland and loved it!

EJ
Reply to  H
10 days ago

The only residential program in NJ is Hidden River which accepts all age females at this point. I am actually scheduled to admit to their program. Monte Nido has about 3 locations in various parts of NY (Rockland, Westchester, and Western NY). Center For Discovery has an adult location in CT. If you’re willing to go a bit south, there’s an ERC in the Baltimore area, as well as Aster Springs in Richmond, VA. I’ve looked into all the above, but decided against going to a facility that is part of a huge, corporate network, i.e., ERC, Monte Nido, CFD, etc. The pros of these “chains” are they have a large pool of resources to draw from BUT programs may be more cookie cutter, staffing issues, etc. Seems to me a large portion of the budget for these chains goes to marketing. I tried to get information about ERC program for women over 40 in Texas, and no one could tell me much more than what I could read on their website. A privately owned facility has more leeway to be individualized (not a given though, all depends on who runs the program and their particular focus) and you don’t have disgruntled staff bowing to corporate nonsense.

LVA
Reply to  EJ
10 days ago

I am waiting on clearance for Hidden River. I have heard good things…

Rachel, EDTR
Admin
19 days ago

Sorry the site keeps crashing randomly for a few minutes. (It’s not just in your head lol!) If it doesn’t load, give it up to an hour and then refresh. If it is ever down for more than an hour email me at eatingdisordertreatmentreviews@gmail.com to let me know. It should be fixed soon though!

liz
20 days ago

URGENT

Having a psychiatric emergency in Central IL (manic episode that may not stop without intervention largely because of my inability fo keep sabotaging myself with substances) I’m a senior (50) ANBP and I’m not interested in long term eating disorder treatment because tbh I’m a realist but my experieces with my local psych ward over the years have been miserable partly due to their complete lack of ED awareness (and als because there is literally nothing to do there all day but watch cable television- no groups, no library, they seize my kindle- which I use because I’m OLD and can’t see small print)

It’s fucking torture being there and I basically do anything within this mortal realm to avoif admission there.

I remember reading here a few months ago that there was a place in the city (Chicago) with an ED unit in a medical hospital and someone asserted that “they are a really good place to go with co-moribidities” Pretty sure it was called St JOsephs and admit was available only via the ED or direct admit from your physician. Does this ring a bell for anyone?

Like I said this is kind of a psychiatric emergency- I can’t just take the batteries out so I would appreciate any/all responses suggestions ASAP so help my god forever and ever amen

Rachel, EDTR
Admin
Reply to  liz
19 days ago

Ascension St. Joseph’s Hospital in Chicago, IL.
The address is 2900 N Lake Shore Dr Chicago, IL 60657
The Emergency Room entrance is “Door 2.”

Tell them you are having a psychiatric emergency from a manic episode so need to be admitted right away, but that you also have an eating disorder and stabilizing your ED is actually the main issue so you’d like to do the ED unit.

Here is the link for their ED unit: https://healthcare.ascension.org/locations/illinois/ilchi/chicago-ascension-saint-joseph-chicago/departments/eating-disorder-unit

By the way, I’ve been to St. Joseph’s a bunch, before the ED unit opened, and always admitted through the ER. The ER staff is really wonderful.

liz
Reply to  Rachel, EDTR
19 days ago

I assume they take medicad? I’m on Meridian now.

I also live about2.5 hours drive from there which puts me in kind of a picke.

Also I’m not really seeking treatment for my ed, the primary issue is the mania. *TW* I have resigned myself to the fact that my ed is forever. *end TW*

I just think it would be easier to be somewhere where- for instance- they have an RD who’s more informed showing me a generic MyPlate and saying “Hello Ms. Moron, welcome to Remedial Nutrition 100.1.” The place my town if you get there too late to order your own breakfast one of the techs orders for you and last time I was there he ordered me Coke with my breakfast. Which is funny if you have a sense humor about food but an asshole move for somebody with an eating disorder. I’m a funny asshole, too, so I understand but at the time it really sucked and it’s indicative of the complete and total lack of ED awareness there is outside our little bubble

Rachel, EDTR
Admin
Reply to  liz
18 days ago

It made sense to me! Haha, for what that’s worth.

Yep they take Medicaid. The ED unit is a stabilization one, so it would be compatible with harm reduction which it sounds like is what you are looking for. Before the ED unit, I created a sort of ED protocol for myself for the regular psych unit, so maybe you could do that too if you did the regular psych unit. (Mostly things like having a wider variety of snacks, being able to hold things from meals to use as snacks or to finish later, having Ensure/Boost available, being able to have a PB&J if I accidentally slept through a meal, orthostatic vitals, only being weighed backwards and no one allowed to tell me my weight, option to eat at nurses station, meeting with the ED-informed nutritionist as needed, those are the ones I remember off the top of my head.)

Depending on where you are located, Ascension Alexian Brothers or Linden Oaks may be closer, and they both take Medicaid. OSF St. Francis in Central IL has an IOP and PHP ED program, but no IP ED unit, so maybe their psych unit would still be ED informed?

liz
Reply to  Rachel, EDTR
17 days ago

Peoria would definitely be closer but you hear nightmares about their program.

The mania is still sizzling but it’s dying down (my recreational activities were exacerbating it) so hopefully I’ll be okay. Tysm for your support and replies!

liz
Reply to  Rachel, EDTR
9 days ago

Do you think they’d even take me? I just got out of a 3 day stay at OSF down here in Urbana. During the intake the nurse said I looked “okay” (weightwise) and I told him that was offensive. Seriously though I’ve been boosting for the past few months so my BMI is borderline normal. It would be cool to acquire the ability to eat normal food again, albeit in an abnormal way. The boost is expensive and heavy obviously not intended for long-term full-time sustenance.

Forgive me all these questions but it’s really amazing to know that you actually know my area. I really appreciate it.

OSF down here kept sendinf cheeseburgers and french fries. They basically have no menu for all intents and purposes. But the cheeseburgers and french fries offended me both as a vegetarian AND as a Jew, so good job OSF.

liz
Reply to  Rachel, EDTR
19 days ago

jesus christ god bless you if you can disentangle that comment

Me *
21 days ago

i am in recovery and would like to help support someone in their recovery! Horses helped saved my life and I want to be able to share this experience.

i have a horse that would be a great healer. We are located in North San Diego County California.

if you or someone you know want to connect for equine therapy, let me know!

We are all in this together

[* admin note: longtime community member]

K
Reply to  Me *
18 days ago

I am moving San Diego County in June, re-committed to recovery in 2022. I’ve always loved horses. I got to take some riding lessons and go to a horse back riding summer camp as a preteen where I took care of the horse I rode while I was there. Caring for the horse (grooming, feeding, cleaning tack, mucking the stall) was all stuff I enjoyed and had wanted to do for my recovery. Where I currently live, I could not find anything that. While in the earlier phases of recovery, there was a place I could have volunteered, but I was not stable enough yet. I have not rode a horse since I was 18 years old besides maybe one trail ride. I am 39 (female) now, also long-time community member here. I do not know anything about equine therapy. I am interested.

Me
Reply to  K
17 days ago

This is wonderful! Rachel, can you please share my email with this member? ❤️

Rachel, EDTR
Admin
Reply to  Me
17 days ago

Yep!

anonymous
23 days ago

does anyone know of any RTC’s that allow clients to attend ketamine/spravato sessions. or somewhere that offers it in house that is not an inpatient type program. I was able to attend outside spravato appointments at a monte nido location, but am not looking to return there

Elizabeth
Reply to  anonymous
21 days ago

I have heard that some ERC locations allow ketamine treatments, but I’m not sure as I’ve never been there personally. I’ve also heard that Integrative Life Center allows ketamine treatments, but I haven’t been there either, so can’t say for sure, but I remember seeing someone on here say they did ketamine infusions while there.

EJ
Reply to  anonymous
21 days ago

If Pathlight offers it, I would imagine ERC does as well.

Nat
Reply to  anonymous
21 days ago

Cfd

Anonymous
Reply to  anonymous
21 days ago

I know erc does, at least in chicago.

Anonymous
Reply to  anonymous
21 days ago

did you have a poor experience at monte nido?

anonomnomnom
Reply to  anonymous
21 days ago

Aster Springs (Virginia RTC at least) will allow you to attend spravato or ketamine sessions offsite. There is a Greenbrook location convenient to both houses for spravato and I believe a ketamine provider nearby as well. They will arrange transportation to/from. Infinitely easier if you are able to set up these appointments prior to your admission (or at least have started the process of doing so)—happy to provide more info if you’d like.

Anonymous
Reply to  anonymous
19 days ago

ERC does, in Denver, but they are more of an inpatient setting

Anonymous
Reply to  anonymous
18 days ago

I have a friend who did ketamine while at ERC Dallas, Baylor location. This was in 2023.

L
Reply to  anonymous
18 days ago

The Emily Program in North Carolina does

J
Reply to  anonymous
13 days ago

I tried to set up outside Spravato appointments while at Aster Springs Nashville, but it ended up being a huge hassle and I ended up just going without Spravato for the 8 weeks I was there. They were willing to let me do it (as far as I know) but didn’t offer any assistance in setting it up.

YM
25 days ago

Does anyone know of good medical stabilisation units on the East Coast for someone in her 20s that are not Walden, Princeton (told me they do not do medical stabilisation), Johns Hopkins, NYP or RWJ?

EJ
Reply to  YM
23 days ago

Princeton’s program is in a medical hospital, how can they not do medical stabilization? You’d likely have to go to ACUTE or out to California for true medical stabilization.

A noun amongst us
Reply to  EJ
21 days ago

That’s crazy, because I have been to Princeton many times strictly for medical stabilization!

YM
Reply to  EJ
21 days ago

I don’t know, I called them because my intake with a residential let me know I needed medical stabilisation before admitting and recommended Princeton but they told me they don’t do stabilisation and refer out to John’s Hopkins or Sheppard Pratt.

EJ
Reply to  YM
20 days ago

They are far more equipped for medical than Sheppard Pratt! Try RWJ Barnabas…

Elizabeth
Reply to  YM
19 days ago

Sheppard Pratt doesn’t do medical stabilization or even really treat medical issues at all. John Hopkins would be better for medical stabilization, and I had a really good experience at RWJ!

Elizabeth
Reply to  YM
19 days ago

And when I was at RWJ, there were a lot of people there who’d been denied admission by Princeton, so I know they accept people that Princeton doesn’t sometimes

Eliz
Reply to  EJ
21 days ago

Even though Princeton’s ED unit is technically in a hospital, they don’t offer true medical stabilization on the unit itself.

AE
Reply to  YM
23 days ago

What general region of the east coast are you in?

YM
Reply to  AE
21 days ago

Northeast, just outside of what’s considered New England.

Elizabeth
Reply to  YM
21 days ago

UNC center for excellence might. Their ED unit is located in a psych unit, but it is in a larger medical hospital, and I have heard they are good with medical complications. I remember hearing about a new ED protocol at a hospital in MA on here, but I think it was only for people local to that part of MA, but if you’re in MA, I think if you scroll down a ways, you’ll eventually see the post I’m talking about. I know you said no RWJ, but if you ending up having to choose one of the programs you don’t want to go to because there may not be anywhere else on the east coast that does medical stabilizations, so if it gets to the point, where you have to choose one of those programs, I can answer any questions you have about RWJ! They’re not on the east coast, but depending on what level of medical stabilization you need, if it’s nothing major, Rogers IP might be worth looking into. ERC might be another option. I know they tend to handle more serious medical complications than lots of other ED programs.

Elizabeth
Reply to  YM
21 days ago

Actually, now that I think about it, I tried to go to UNC Center of Excellence a few years ago, and they told me no, and it was so long ago I don’t remember the exact reason- this was in 2020, so six years ago, but I think if I remember correctly that it was because I wasn’t medically unstable enough for their program, which implies that they definitely do medical stabilizations, if I’m remembering correctly. They do have an age cap of 26, but I’ve heard they will make exceptions case by case.

Anonymous
Reply to  Elizabeth
20 days ago

UNC won’t handle most medical complications on their ED unit. They’ll send you to a medical unit at UNC until you’re stable enough to come back. They will only do ng tubes and IV fluids on the ED unit.

EJ
25 days ago

Since 2002 I’ve been to 8 different facilities specifically for eating disorder care. Some with multiple admissions. I also have a rather lengthy “resume” of psych stays over the years, which I’m only mentioning to highlight years of treatment trauma. I had a nice stretch of recovery from for a few years (5!) but am in a serious relapse now. My team wants me to consider a higher level of care but I am hesitant because I’ve had a lot of treatment already and I am concerned about a possible trauma response going back into that environment. I’m also nowhere near my lowest weight. I’ve spoken to Laureate and Center for Discovery so far and my overall impression of CFD is that it may be too much of an entry level type facility – not individualized enough to sustain someone who has been around the block. In general I am wary of big programs with multiple locations as I fear they may be too cookie cutter. While I am intrigued that ERC has a track for women over 40, it’s still ERC, if you know what I mean! I honestly don’t know what would be best. Return to RWJ or similar for a quick stabilization and resume my life or really invest the time in a residential program. Is there such a thing as a program that would be 1. Understanding of the needs of a woman in her late 40’s, 2. Sensitive to my past experiences, 3. Strengths based and empowering approach, devoid of demands, punishment, and rooted in empathy/understanding. Thanks for your input.

A
Reply to  EJ
23 days ago

i don’t want to give too much info so that they’re not bombed with calls but give new circle in Alabama a call. They are a new treatment center that isn’t owned by private equity and they have open beds, and sound very individualized. I spoke to Larry with admissions there and he was honest one of the nicest people I’ve talked to from a treatment center on the phone and I’ve spoken to over 20 places in the past few months trying to find places that would take my insurance.

Elizabeth
Reply to  EJ
21 days ago

Bright road recovery in CA is a small, privately owned (i think?) treatment center that has been getting really good reviews on here, and is supposed to be good with trauma. I thought the reviews seemed suspicious, but Rachel said it’s because she asked them to ask patients to leave reviews since there isn’t much info out there about them. Maybe also Haven of Hope (formerly Fairhaven)?

EJ
Reply to  Elizabeth
17 days ago

My dietitian also mentioned Haven of Hope!

Lva
Reply to  EJ
16 days ago

They have a current 4 week wait

Elizabeth
Reply to  EJ
19 days ago

Maybe We Conquer Together? I spoke to them on the phone a while ago, and they were really nice, and I think they cap the amount of patients they have at a time at something like 6-8, so they’re very small, which hopefully means more individualized attention

EJ
Reply to  EJ
10 days ago

Update: There are still 10 people ahead of me on the Laureate waitlist which would mean another estimated 6 weeks. I don’t want to wait at this point, I’m barely functioning as is. I ruled out ERC and CFD pretty quickly. Which left me with Rogers, Hidden River, and CFC. I decided it would best for my already strained marriage that I stay as close to home as possible. The end result is I will be admitting to Hidden River.

Anonymous
1 month ago

Can sometime do a review of Galen hope without the housing option?

Anonymous
1 month ago

Does anyone have experience with Charlie Health? *possible TW: SH* In my case, it would be for primary mental health (SH) rather than ED, although I’m anticipating the ED behaviors coming up more as I decrease the SH, so they would need to be able to support that aspect as well… *END TW*

Rachel, EDTR
Admin
Reply to  Anonymous
1 month ago

I’m just adding a version with the specific trigger redacted to make sure everyone sees the post:*
Does anyone have experience with Charlie Health? In my case, it would be for primary mental health rather than ED, although I’m anticipating the ED behaviors coming up more as [my mental health improves], so they would need to be able to support that aspect as well…

*note: i feel terrible about having added the warning, i’m so sorry! OP i’ve been where you are. ❤️ so just in case you are like me and might worry about it, i want to make it clear to everyone that OP didn’t break a single rule in their post, not even accidentally, and that they followed every rule and guideline to the letter.

Elizabeth
Reply to  Anonymous
1 month ago

I have no experience with Charlie health, but I just wanted to let you know if you’re not already aware of it- Alexian brothers in Chicago has a SH/ED combined inpatient psych unit. I know maybe that’s not what you’re looking for, but I just wanted to let you know about it! And also, I’m so sorry you’re struggling with that. I struggle with that too, as well as my ED, and it’s so so hard. Sending you good thoughts ❤️

Anonymous
Reply to  Elizabeth
1 month ago

(OP here)
I appreciate the recommendation! I’m trying to find an option that will allow me to stay in school (and tbh I also don’t feel that I “need” inpatient at this time), but I will definitely keep that program in mind if I start looking into a higher level of care ❤️

Clt
1 month ago

Monte Nido Rockland??

Hi everyone, I’m having a heck of a time finding any reviews/feedback for the Rockland location in New City, NY. Has anyone been or know of anyone who has been that can provide some feedback? Thanks so much!

anon
1 month ago

*possible tw for weight restoration discussion (pro-recovery!)*

programs that don’t overshoot weight? i love monte nido but have been overshot significantly every time i go which keeps leading to relapse. looking for a program w a more moderate approach to restoration?

Anonymous
Reply to  anon
1 month ago

TW for further mentions of weight, set point, + IBW:

CFC put me on a maintenance meal plan around my actual “set point” (which was based on growth charts, and is lower than the IBW for my height… but is also where I’ve been able to maintain while in genuine recovery, eating intuitively, etc). I discharged around a month later still within the range i “normally” maintain while in recovery. But I know I’ve heard mixed reviews re:CFC’s weight restoration expectations, so YMMV!

Depending on your circumstances, it may be worth looking into a program with a SEED/harm reduction track (e.g. Sanford, potentially Princeton)

Nonnie Mouse
Reply to  Anonymous
1 month ago

Princeton doesn’t have a SEED program anymore but is more flexible than they were prior to having the SEED program. They have switched from using a standardized IBW calculation to calculating based on growth charts, weight pre-ed/in periods of recovery, etc that is different for everyone. They asked me about my weight history, family member’s weights, etc and for me the goal came out the same as the old system.

Anonymous
1 month ago

Hi, I was wondering if anyone has been or knows more about Bright Road Recovery in Claremont, CA? I have an intake with them tomorrow and wanted to know more about it? (Already checked their page but it doesn’t have many reviews).

Elizabeth
Reply to  Anonymous
1 month ago

How did the intake go? Did you get any information about the program?

smurf
1 month ago

Hi, I am 25 years old however I have received the best help and treatment for inpatient stabilization at Children’s Hospital of Colorado many times. When I was in my teens and even as 22 year-old. Although now I am 25 and I am doubtful that they will help me, but it is the only place I would feel comfortable and safe going due to many other previous traumas. Does anyone know or maybe Rachel? Can you help me figure out who the best person/how I can ask a doctor or get through to anything except for the front desk to discuss my situation and ask if an exception can be made?

sunshiney
1 month ago

Is there anywhere similar to the concept of ACUTE where it’s room based that you stay in your room and don’t have to interact with other patients that accepts Medicare? I can’t go back to ACUTE bcuz I have Medicare now but I’m a lot older now and would prefer the same concept of being able to stay in my room and not have to do groups

Nat
Reply to  sunshiney
1 month ago

how old are you? It depends on your age if your <26 you have many options

sunshiney
Reply to  Nat
1 month ago

No I’m mid 30’s

Nonnie Mouse
Reply to  sunshiney
1 month ago

I am not aware of anything, and I’ve done a lot of research into every program I can find that takes Medicare. The closest two things, unless I’m unaware of something, would be a regular medical hospital (but it can be very hard to convince one to admit you, and the few that have a specific ED protocol tend to be catered to locals and may even refuse people from further away) and Princeton. Princeton doesn’t force groups and rooms are open all day but I expect they’d be encouraging you to go your whole stay. Most people eat in the dining hall with everyone else, sometimes people eat in their rooms for various reasons but I couldn’t tell you if you’d be able to have that accommodated. I recall someone on this site who had Medicare having their outpatient team convince Princeton to let them be room-based their whole stay, but that may have been when the SEED program was running? They are quite individualized these days and it depends on what team you get and your specific situation how much they’ll work with you. YMMV.

cd
1 month ago

just wanted to post a PSA in case it might help anyone: the Gaudiani Clinic just opened up their applications for discounted care through a nonprofit. Applications are open through the end of February and cover ~90% of clinic fees. i can only speak to my own experiences, but as a current patient, having an informed and experienced PCP who understands all of the physical and mental complications of an ED has been extremely helpful, and the whole team has treated me with so much warmth and kindness. i know there are so many people who are looking for this kind of care, but are prevented by the barrier of cost, so i wanted to share in case this could help someone access treatment.
https://www.gaudianiclinic.com/discounted-care

Anon
Reply to  cd
1 month ago

Got excited until i saw my state wasn’t listed and no Medicare only private insurance. Seems like it’s clear where her values truly lay.

Anonymous
Reply to  Anon
1 month ago

no because literally, how does one even begin to justify a $2-3000 consultation cost (plus their continuing client fees that would have you at >$5000 per month)?? I understand wanting to work with a medical provider who truly understands EDs, but I just cannot get behind that absurdly-high cost for basic services :/

Rachel, EDTR
Admin
1 month ago

If you see a review page that needs its new review/s pinned and/or old review/s unpinned, please reply to this post with the name or link! I will delete your reply after I have fixed the page, and edit this post to reflect that it has been fixed.

Review pages fixed so far:

(Thank you Nonnie for bringing this issue to my attention!)

ES
1 month ago

Not looking for a treatment center recommendation, but curious if anyone has used a recovery coach before and what they thought. If I do, it would be discharging from a residential treatment center.

Anonymous
Reply to  ES
1 month ago

I have and I think it can be beneficial, but also keep in mind that they don’t have therapy degrees and some of the things they do/say aren’t always from a therapeutic lens. Like they know what they’re talking about because they’ve been through it themselves but they tend to just speak from their own personal experience rather than an overall therapeutic perspective… if that makes sense. And sometimes I’ve seen that their own feelings and backgrounds tend to unfortunately guide the way. It’s nice to have the 24/7 support and to talk to someone who personally gets it and understands, but I felt pushed, misread, and given up on at times with the coaches I’ve worked with in the past because I was struggling at certain points and their support wasn’t ’curing me’.

FI
Reply to  ES
1 month ago

I have worked with one (in addition to a full outpatient team) for over a year now. She helps me with setting and meeting goals very specific to where I am right now, even if those goals are just “make time to journal each day this week.” Then she has daily text support always available for emotional support as things come up. I’ve found it to be a really good help for those day to day needs as I do deeper trauma work in therapy.

Anonymous
2 months ago

Question for the community:
I’ve been to treatment many, many times now and am looking to go back again. Do you find going back to the same facility as helpful? Does anyone have recommendations on good treatment centers around the country for anorexia struggles?

Nonnie Mouse
Reply to  Anonymous
2 months ago

I keep going back to the same place because I do always find it helpful and get something out of the stay even though I’ve done that program (Princeton) multiple times. However, my options are severely limited due to insurance. If I had insurance that covered a wider variety of programs I would have absolutely tried elsewhere with a different approach by now.

C
Reply to  Anonymous
2 months ago

I went to the same treatment center twice! (It was not specifically an ED treatment center, but they did treat secondary eating disorders) The second time I went I was at a different house, so I had a different team, and obviously a different group of clients. I did find it helpful to get a different perspective of things, and a different approach from clinical. I knew going into it that I had a really positive experience the first time I went and that stay had really helped, so I felt more comfortable going a second time. I also reached out to other clients that ended up going back a second or third time and had heard overwhelmingly positive things from them too.

Anon
Reply to  Anonymous
2 months ago

I don’t have any facility recs as I have been out of treatment for 11yrs now…but just wanted to say I think more often than not switching things up & trying somewhere new is best.
There’s an element of comfort returning to where you’ve been, which seems like a good thing but it’s usually good for your ED but bad for recovery.
After struggling for 20 years and being to many facilities multiple times, it was a new facility with a different approach that finally helped me enter (& remain in) recovery.

AE
Reply to  Anonymous
1 month ago

It depends on the program. I returned to ERC Dallas and Denver for a good 5 years and never saw any improvement. Then I tried Center for Change and it was the most helpful place I’ve ever been, so I’ve returned there and found it helpful even in my second and third admissions there. I highly recommend CFC above just about any other program. CFC and Laureate tend to have the best reviews here.

E
2 months ago

I have the choice between rwj somerset and ny pres. To be admitted next week. How do these programs differ, which would u recommend which is less traumatic. Length of stay. Was just in residential for a little over two months and weight platued so they recommend hloc trying to find a place that isn’t too long and the place I was at really traumatized me.

Worried about friend
2 months ago

Does anyone take MediCal or MediCare???

mandy
Reply to  Worried about friend
2 months ago

For which level of care? And how old is the person seeking treatment? This website is great to search that kinda thing because there’s tags for Medicare/caid programs

Anon
Reply to  Worried about friend
2 months ago

which county medi-cal?

Scarred
2 months ago

Do trauma informed medical stabilization units exist? Not psych inpatient

mandy
Reply to  Scarred
2 months ago

The only official medical stabilization program is Denver ACUTE unfortunately. They’re the only program that bills under medical benefits, not psych. They’re definitely not trauma informed based on reviews, though.

sunshiney
2 months ago

Specifically which locations for adults of Monte Nido accept Medicare? TIA!

A
Reply to  sunshiney
2 months ago

I know for a fact Walden inpatient takes Medicare. There were several people who were there with Medicare

EJ
Reply to  sunshiney
2 months ago

Residential treatment? Unfortunately, traditional Medicare, the federal insurance program for aged and disabled, does not cover residential treatment at all – only inpatient level of care, hospital based php and outpatient appointments (but not an outpatient dietitian unless you have diabetes or kidney disease). Medicaid, the state by state run insurance program for the indigent may cover residential, but not many facilities take it because of low reimbursement rates.

Fearlessfireflies
Reply to  EJ
2 months ago

I’ve had Medicare for the last 17 years and your description of what it covers especially when it comes to ED treatment is by far the best I’ve seen!

EJ
Reply to  Fearlessfireflies
2 months ago

thanks! It comes from both personal and professional experience at this point (I do medical billing for mental health and nutrition). I fought my way off disability and lost Medicare about 3 years ago. I am now covered under my spouses employer sponsored commercial PPO. The Medicare was a real problem when I was trying to access residential in 2019, even as a secondary to my husband’s plan, facilities would not accept me.

sunshiney
Reply to  EJ
2 months ago

No on the Monte Nido website it says they inpatient and the tags here say Medicare and Medicaid but it’s confusing which locations

A
Reply to  sunshiney
2 months ago

Medicare only covers inpatient, not residential, so only the Walden and/or Rosewood affiliated programs do. When I checked last year I only had the Deadham, Mass unit covered, but I am in Idaho so things get weird sometimes. That said, it is definitley limited to the inpatient units.

sunshiney
Reply to  A
2 months ago

So just the Deadham location as far as you know?

A
Reply to  sunshiney
2 months ago

yes

A
Reply to  sunshiney
2 months ago

Yes just the Dedham location because it has 2 IP units for adults

Fearlessfireflies
Reply to  sunshiney
2 months ago

In 2009 at 23, I went to Walden Behavioral Care – inpatient for two weeks when they were still in Waltham, Mass before being bought by Monte Nido. I only had Medicare at the time (the red, white and blue card), way before getting an advantage plan.

Yoav
2 months ago

Hi All – I posted about a month ago about my 70 year old mother who suffers from anorexia nervosa (amongst other medical conditions) and has had a steadily declining BMI for 10+ years. She recognizes the problem and tries hard to manage a handful of professionals herself (dietitian, psychiatrist, therapist, GI specialist, etc.) but none will see her frequently and it’s clearly too much for her to handle.

The Virtue Recovery Center in Las Vegas is a great fit for her requirements, but now it has come down to “I just don’t want to go!!” with no other reasoning. Understandably so.

Does anyone know an intervention specialist or some professional that can speak with her with the intention of getting her to go to Virtue? She says nobody understands what she is going through, including the direct family.

 Thank you!!

Sparkle
2 months ago

Posting for a friend!

Kaiser does not have an IP ED treatment facility ( or even OP). Does anyone know if they will cover another facility for Kaiser members? Maybe a single case agreement?

Penguin
Reply to  Sparkle
2 months ago

When I was at CFD they took Kaiser clients in res, no idea if that’s still the case. I think Reasons used to take MediCal, which Kaiser sometimes is, so they might. I think Alsana took Kaiser at one point. Is it NorCal Kaiser or SoCal? (silly as it may seem they’re different insurances and will cover different stuff). NorCal Kaiser may cover one of the academic med centers up there like UCSF or Stanford, SoCal may cover the academic med centers down here like UCLA/UCSD.

Worried soul
3 months ago

Hi all, I’m curious if anyone knows of any good stabilization programs for adults 30 and over I’m looking in California but I’m willing to go out of state if I have to do so, I’m also looking for a high quality residential as well that has really great reviews I’m desperate if anyone can help

mandy
Reply to  Worried soul
2 months ago

Unfortunately there aren’t any ED medical stabilization programs in California for adults over 25. Some hospitals can help from the medical point of view, but there’s no program in the state unfortunately. i hope you were able to find some help since you posted this ❤️‍

Worried
Reply to  mandy
2 months ago

Hi Mandy do you know of any, in general out of state or even country

mandy
Reply to  Worried
2 months ago

Of course!! All of the following places take people age 30+. I don’t know any out of the country, so these are all in the US:

In CA:
– Providence St. Joseph’s Hospital is really efficient if you need to go through their ER and, in general, I’ve found they take my abnormal vitals/labs/symptoms way more seriously than other hospitals like UCLA. It is not an ED program, just a regular hospital, so they may only keep you for a few days, then you’d need to follow up for residential or inpatient.

Out of State-
-I just posted a lengthy review of Princeton in NJ. I don’t necessarily recommend this program if you have several chronic illness (I do, and I just left there). But read through that review though and see if it may be a good fit anyway! If you’re desperate, it has potential to help so definitely don’t rule it out. It’s hospital based, but not medical stabilization. It is a psych-based program.

-Sanford in North Dakota. I haven’t gone there, but it’s also in a hospital setting. They have less beds though, so wait-lists usually tend to be longer.

– Laureate in Tulsa, OK. I haven’t gone here either, but the reviews are generally positive, and someone just posted an estimated waitlist duration a few days ago. This is also hospital-based.

– Center For Discovery- Residential, not inpatient. I haven’t gone to their Residential, but I know people who have and they are one of the better ones. I’m having a positive experience at their outpatient level right now. They have locations all over the country. I’m unsure if their CA locations take ages 25+, but I did find out from a provider that their Chicago location does *TW* feeding tubes, which can be a very helpful tool for medical stabilization. *TW OVER*

– Melrose Center in St. Louis, Minnesota- I don’t know too much about it, but it’s inpatient level and they take adults over 25.

– Center For Change in Orem, Utah- I haven’t gone here either, but I’ve heard decent things. This is inpatient level, but not hospital-based.

– There’s always Denver ACUTE, but there are a few things to note for this program: If you have Medicaid or Medicare, even if it’s secondary, you’d have to drop it and be free from it for 90 days before you can admit. The other is be aware and read the reviews. It can be a life-saving program, but there are a lot of things to be aware of. This website is the perfect place to read others’ stories from there. Just go to that page knowing it can be triggering from a trauma aspect. A benefit of ACUTE could be that it is the only true medical stabilization program in the country, meaning they bill your medical insurance rather than behavioral. That can also be a negative for some people, since they don’t focus on the psych aspect.

I’ll post a follow-up if I think of any more, and best of luck to you!!

Worried
Reply to  mandy
2 months ago

You are such an angel thank you so much I truly appreciate you taking the time to write these out for me

L
3 months ago

Are there any treatment centers that people would recommend for those who don’t have to weight restore? I’ve had my ED for enough years that with restriction, I truly don’t lose weight and my weight stays stable. Yet I need somewhere to help with behaviors and will do the deeper work. I don’t know if any place like that exists, so I thought I’d ask.

I’m also in my first years of masters in clinical health counseling program and my classes are both synchronous (once a week for 1-2 hours) and asynchronous. A program that would let me continue to do school would be ideal.

Elizabeth
Reply to  L
3 months ago

Most residential and PHP and IOP programs will accept patients who do not need to weight restore. Even many inpatient programs accept patients who do not need to weight restore. Every time I have been to residential or inpatient, I didn’t need to weight restore. Most ED programs will accept patients who don’t need to weight restore, as the majority of people with ED’s do not need to weight restore, and Atypical Anorexia is more common than “regular” Anorexia in which the patient is underweight.

Most residential programs, as long as your symptoms and ED behaviors are bad enough to meet their admissions criteria, they will still admit you, even if you do not need to weight restore. Someone can correct me if I’m wrong, but I am not aware of any treatment centers at the residential or PHP levels that will refuse to admit someone solely because they don’t need to weight restore?

Usually, it’s at the inpatient level or at medical stabilization programs that are more likely to not admit patients who are already weight restored, but at the residential level, I think most residential treatment centers accept patients who don’t need to weight restore. And even at the inpatient level, plenty of inpatient programs still admit patients who don’t need to weight restore as long as they’re ED behaviors/symptoms are bad enough to meet admissions criteria. Even some medical stabilization programs still admit patients who don’t need to weight restore as long as they’re medically unstable enough to meet their admissions criteria, they’ll still admit them, irregardless of their weight. Even Acute admits patients with Atypical Anorexia and Bulimia who don’t need to weight restore if they’re medically unstable enough for their admissions criteria.

A program that lets you continue to do school while there is going to be harder to find though. But I think pretty much every residential treatment center (and many inpatient programs too) on EDTR accepts patients who don’t need to weight restore as long as your ED behaviors/symptoms are bad enough to meet their admissions criteria. I have been to residential and inpatient many times while not needing to weight restore.

Anon
3 months ago

I was scrolling through instagram and a post on the ERC page popped up and it said something about the Baltimore center having an ARFID program. Is that something anyone has heard of before? I went to ERC Chicago and they weren’t great with ARFID so I’m intrigued.

Anonymous
Reply to  Anon
3 months ago

They only have it for kids but TEP is starting a fully arfid program for adults and taking new patients now

Anonymous
3 months ago

Hello! Just writing a comment to say that I came across a newer treatment center in Westport, CT that you could maybe add to the list on here. It’s called LiftWell Health, and it looks like they just have PHP and IOP!

Anon1
3 months ago

Hi, posting this on the general forum to hopefully reach more people. Does anyone have experience at ERC Dallas or ERC Baltimore in the last few months that would be able to share their experience?

Anonymous
Reply to  Anon1
3 months ago

I have experience with ERC baltimore somewhat recently and had a great experience would be glad to answer questions

Anon
Reply to  Anonymous
3 months ago

Would you be willing to write an updated review?

Anonymous
3 months ago

Sanford CTED in Michigan says I can admit to their intensive PHP in a few days and stay in their residential housing. Does anyone have experience with their program and would recommend it / not recommend it?
Thank you so much.

C
Reply to  Anonymous
3 months ago

I did their PHP/iop in 2022 and it was great at the time, but I do think a lot has changed since then.

Anon
3 months ago

I am between the emily program, monte nido, or selah house for PHP (with housing). Any feedback would be deeply appreciated, and I am on a shorter timeline to figure this out. Thank you.

Sarah
3 months ago

After over 2 years of no treatment I’m having to reconsider my options. Are there places that allow for asynchronous classes online during down time? I’m in my MSW program and don’t want to take a medical withdrawal. Not looking for inpatient medical.

Penguin
Reply to  Sarah
3 months ago

I know people who did this at Alsana (Santa Barbara) both res and php/iop, but I think it’s case by case and this was about 4 years ago so ymmv, they were generally fairly permissive with this kind of thing. Is there a region of the country you’re needing/wanting to stick to?

Sam
Reply to  Sarah
3 months ago

Hi Sarah–are in CA? There are a lot of programs in SoCal. I bet someone would let you take some classes. Maybe Reasons? Bright Road? I don’t know about CFD or Alsana, but maybe them too?

Nat
Reply to  Sam
3 months ago

Reasons won’t let you do school I asked some Cfd’s will but not a lot of time

Norah
Reply to  Sarah
3 months ago

Renfrew in FL has staff and time dedicated to helping people stay in school while in treatment. (At least as of 2022.)

anon
3 months ago

Hi! Does anyone have experience navigating seeking care out of state while on state marketplace insurance? To be more specific, I have a qualified health plan through Anthem (not Medicaid) in NY, but the options in state aren’t great, and it’s my understanding anything out of state is considered OON (and since it’s an HMO, OON isn’t covered beyond emergencies). Thank you!

Anonymous
Reply to  anon
3 months ago

I’ve tried calling larger programs like TEP, ERC etc and also have an HMO and they do not facilitate single case agreements with OON insurance You’re out of luck with out of state treatment unless you have a PPO sadly. I’m entering res in one of my two in state options today as a result of insurance.

EJ
Reply to  anon
3 months ago

you can try to obtain a single case agreement/out of network exception if you have a specific out of state treatment facility in mind. Otherwise you are limited to those facilities in your network.

C
3 months ago

Does anyone have any recommendations for neurodivergent affirming treatment centers? Particularly ones that may work with PDA? I’m sure that they are hard to come by, but if anyone has any leads, much appreciated!

mandy
Reply to  C
3 months ago

Hi, what level of care are you looking for?

C
Reply to  mandy
3 months ago

Probably residential!

Anomnomnom
Reply to  C
3 months ago

Not perfect by any means but I have found Aster Springs (VA res is where I have been) to be the most neurodivergent friendly/affirming out of the treatment centers I have been to.

In particular, one of the dietitians on staff takes a very “no power struggles” approach with her clients which I found extremely helpful with my own PDA. The program in general is VERY supportive of sensory accommodations, willingness to accommodate food preferences (temperature, texture, preferred brands, etc), openness to remaining on certain medications (ie stimulants for ADHD), etc. Fidgets are welcomed and encouraged at the table and in groups. Admissions staff likely will not be the most helpful but request to have a call with on site clinical staff who will definitely be more able to answer questions/provide more details. I would also recommend your outpatient providers have a call with the onsite team prior to your admission to reiterate/provide backup to your needs—in my experience they have very much welcomed this.

Happy to answer further questions if you’d like.

Anon
3 months ago

I am looking for recommendations for a helpful PHP with housing that takes BCBS, works with co-occuring trauma (or is at least trauma informed), and offers spravato or ketamine therapy (although not a deal breaker).
Some other info about me is I m neurodivergent ,am in my mid 20’s, and live in the Midwest.
I would go to Skyway Behavioral Health as it is close to me, but unfortunately I attended their program earlier this year and they are not at all equipped to be a full ED program imo.
ERC has also not been helpful for me in the past.
I am currently in residential but would probably be stepping down sometime early next year.
Thanks so much!

Anonymous
Reply to  Anon
3 months ago

I would consider erc baltimore. they offer housing in a hotel normally covered by financial assistance and they offer spravato in house. they also do CPT which is a trauma therapy.

Elizabeth
Reply to  Anon
3 months ago

Hi! Is it ok if I ask what residential you are in right now? I’ve been looking for a while for a residential that is good with trauma and offers spravato

Elizabeth
Reply to  Anon
3 months ago

Maybe you could check if Within is in network with your insurance? That way you could continue to do spravato from home, and I’ve heard that Within is trauma informed? I think Rogers has PHP in Wisconsin, but I don’t know if they have supportive housing for people not from the area?

Elizabeth
Reply to  Anon
3 months ago

So I looked at their page, and it says Roger has PHP and IOP in Skokie, Illinois, as well as PHP and IOP at various cities in WI and Minneapolis

Elizabeth
Reply to  Anon
3 months ago

The Emily Program does PHP in MN, Ohio, PA, and Washington. I think they offer supportive housing, but I’m not sure about that?

Nat
3 months ago

Does anyone have luck or recommendations of inpatient or php that takes Medicare I’m in California all recommendations are appreciated

Anon1
Reply to  Nat
3 months ago

Hi,
I am also in California, and decided to travel east to Princeton. They do accept Medicare. I had a great experience there( as great as treatment can be :).
I recommend checking out the review page!

Nat
Reply to  Anon1
3 months ago

I called today they arnt accepting people in the wait list

Anonymous
Reply to  Nat
3 months ago

Nat,
i would encourage you to keep calling. The waitlist reopening can happen quickly.

Bj
Reply to  Nat
3 months ago

How frustrating I’m so sorry ..they called me with a bed today but I’ve decided to bf elsewhere. It’s so random when it opens up. But moves fast once you are on it . I wish you the best of luck

Nonnie Mouse
Reply to  Nat
3 months ago

I’m not 100% sure but I THINK what’s going on is that they stop accepting people when it reaches a certain point in hopes that people who have other options go elsewhere in order to keep the wait manageable for those who don’t or who want Princeton specifically. Other programs that take govt insurance can get waitlists into the 3-4 month range. So it doesn’t necessarily mean the waitlist is months long or anything, although there have been community members here who did have to wait months so it does vary. So keep calling often to catch them when they’re open

Penguin
3 months ago

The Emily Program Raleigh-Durham (I think this is the artist formerly known as Veritas(?) but correct me if I’m wrong!) Just launched the first ARFID specific center! Really exciting news for so many! Hopefully it’s as specialized as it sounds.

https://www.businesswire.com/news/home/20251202474797/en/The-Emily-Program-Opens-Nations-First-ARFID-Center-of-Excellence-in-RaleighDurham

Yoav
3 months ago

Hi All – my 70 year old mother suffers from anorexia nervosa (amongst other medical conditions) and has had a steadily declining BMI for 10+ years. The latest official reading was in mid-October of XX, although since then she definitely has had some sort of determined mental shift and has gained X kg as of a few days ago. Local psychiatrists/therapists/dietitians will not accept her until she goes to a residential treatment program. The problem is almost all of the centers are very strict, understandably so for most patients, but for her at the age of 70 there needs to be flexibility i.e. be able to use the bathroom freely, eat a small snack at 5am when she wakes up, lay down during the day if/when she feels dizzy, etc.

I am thinking the better approach might be to find a high-end addiction recovery center that also has expertise in eating disorders (nutritionists and therapists). Does anyone have any recommendations? Does anyone know women 60+ years old that have gone to any centers? Thank you!!

**numbers redacted by admin per site policy

Yoav
Reply to  Yoav
3 months ago

Has anyone been to the Virtue Recovery Center in Las Vegas? They have an ED program that might be a great fit for my mother.

Anon
Reply to  Yoav
3 months ago

Hi Yoav, I commend your mom for being open to treatment! I don’t think an addiction recovery center would be equipped to deal with the complexity of refeeding.
-I would recommend Laurette even though they are strict they are individualized and in my opinion the best (I have been to many places).
-Aster Springs in VA also has room for flexibility with food and resting being an 8 bed program. When I was there I was with older clients (its luck of the draw) but they had a good experience.
If she is looking for more of a stabilization program before outpatient Princeton could be an option but they are strict.
Haven of Hope in TN also has a very individualized approach.
There is no perfect treatment center but hopefully it gives her what she needs to move forward.

Elizabeth
Reply to  Yoav
3 months ago

I’m not sure an addiction facility would be a good fit, as they usually aren’t equipped to manage ED’s. And idk if this is the case or not, but if your mother struggles with chronic pain and is on any pain meds, an addiction facility would most likely take her off of them. I think an inpatient ED unit located in a larger medical hospital would probably be the best fit for someone her age. They will be more equipped to deal with serious medical issues, and more likely to have real hospital beds that are actually comfortable to sleep in for people with back pain. The only ED program I have been to that I think would be equipped to deal with lots of serious medical problems is Robert Wood Johnson in NJ. But in general, most residentials are not equipped to deal with the types of medical problems elderly people have. I have been denied admissions from every residential facility I’ve contacted due to serious non-ED related medical problems I struggle with, and I’m only in my 30’s. I think an inpatient ED unit that’s located in a larger medical hospital would be your best bet. Sanford is also supposed to be good with serious medical issues. She wouldn’t have to do their SEED program if she didn’t want to. They have a regular ED track for adults too, that’s not SEED.

G
3 months ago

This is launching residential for adolescents in new York in 2026 https://www.thehealingconnectioninc.org/residential-program

H
4 months ago

Hello again,

I’m still searching for a medical stabilization program for adults. Some earlier comments here mentioned that UCSF will treat adults at their Parnassus location. Does anyone have experience with this program? Any information you could provide would be immensely helpful. Thanks once again.

MA
Reply to  H
4 months ago

I know an adult who did medical stabilization in Cedars Sinai. I’m pretty sure they have some sort of ED protocol.

Fearlessfireflies
4 months ago

I recently moved to the western suburbs of Chicago, does anyone know if Northwestern’s ED protocol is strictly medical stabilization or a psych admission??

In the process of choosing a primary care, etc. and wanted to know if I should go with northwestern medicine if that’s the case for a direct admission.

* (I have a Medicare advantage plan and can’t get treatment until the new year no matter how much I continue to go downhill) even though I SO badly want off this rollercoaster. ☹️

Rachel, EDTR
Admin
Reply to  Fearlessfireflies
4 months ago

I’ve been to Northwestern once years ago, and the psych unit there was actually pretty decent compared to other psych units, but they didn’t treat eating disorders there – they would transfer you to Ascension Alexian Brothers or Endeavor Health Linden Oaks for inpatient ED treatment.

I would recommend finding a primary care doctor in the Ascension network. I have Medicare Advantage and had a very good experience with their providers, although this was years ago when they were called Presence/Amita. Also, two of the three inpatient ED units that treat adults are Ascension ones – Ascension Alexian Brothers (northwest suburbs of Chicago) and Ascension St. Joseph’s (north side of Chicago). On the Alexian Brothers review page here, you can also see a review of their medical stabilization protocol at the medical hospital.

Fearlessfireflies
Reply to  Rachel, EDTR
4 months ago

Thanks again for your prompt response. I’m actually the one who inquired about admitting to Ascension St. Joseph’s on your own back in mid October and you went above and beyond!!

I actually did notice that Presence still comes up when I ran Ascension through my potential plan. I’ve searched all the other ED options in and around the area and only Ascension and Northwestern are covered from what I can gather for now. Thanks for the tip, I’ll go back to the drawing board!

S
4 months ago

I’m being required to seek *possible TW* refeeding *end TW* in a hospital setting before admitting to residential? I can go somewhere in Massachusetts or Rhode Island – has anyone had an okay experience in either of those hospitals?I’ve just had bad experiences in the past and it’s scary and dehumanizing usually.

AE
Reply to  S
4 months ago

Beth Israel in Boston was helpful for me. I posted a review from this summer on their page. You admit through the ED and your doctor can call ahead to request admission.

Akili
Reply to  AE
4 months ago

I’ve been to Beth Israel twice, with mixed experiences, but I generally think it’s a good option. I’d be happy to share more about my experience if you’re interested.

Anonymous
Reply to  AE
4 months ago

Can I maybe ask how you found a doctor that specializes in EDs in Boston or even cares? I’m not UW and I’ve had an ED for about 20 years my PCP but doesn’t see things like low potassium as something that even needs to be treated or mentioned. I just want a doctor that is informed.

A
Reply to  Anonymous
4 months ago

bump, this info would be helpful for me as well. I’m in western MA and have to see therapist and dietitian from Boston bc there’s nothing out here.

Fearlessfireflies
Reply to  A
3 months ago

I can recommend a therapist in western Mass, Longmeadow to be specific. I saw her when she was affiliated with Baystate Medical Center in Springfield but she’s now in private practice and accepting adults with ED’s. I speak highly of her!

https://www.psychologytoday.com/us/therapists/cheryl-bonica-longmeadow-ma/898553

I also saw this dietician a few times through Baystate Medical Center but I don’t know if she’s still practicing as I haven’t seen her since late 2006/early 2007.
https://www.umass.edu/public-health-sciences/about/directory/claire-norton

Fearlessfireflies
Reply to  S
4 months ago

Rhode Island has NOTHING in terms of treatment for ED’s if you’re in need of medical stabilization and you’re an adult. They only have two ED specific PHP/IOP programs and that’s IF you have the right insurance to cover the costs. Instead they’ll admit you to Rhode Island Hospital and place you on the psych floor regardless of what you tell them. Before moving out of this state, I was told repeatedly that this was my ONLY option as only teens have ED’s!!!! I avoided this like the plague.

I’ve lived in Massachusetts at different times and you’re so much better off getting treatment there. So many more options. Good luck!!!

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